My dd 15 has had joint problems for a few years, now getting worse and i have ehlers danlos and it runs in my family she has been referred to a rheumatologist now waiting for appointment but after contacting some places asking about it all have said she will have to be refferred to harley street as thats the only specialist seeing children and its private so will cost me £300 minimum just for initial consult. surely this isnt the only way to get a diagnosis? can someone please help