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Original poster

Metopic craniosynostosis

2 replies

Mudgling · 19/07/2019 22:22

Hi, does anyone here have experience with craniosynostosis?. My ds has been diagnosed with metopic craniosynostosis with trigoncephaly. He is due a big op in the next 3 months. I have asked to transfer to one on the specialist centres, John Radcliffe (oxford). Any one have experience with this?

OP posts:
Paradyning · 20/07/2019 20:17

They thought my dc had it but turned out not. But just to say you are in excellent hands jn the JR. They are absolutely incredible

blowinahoolie · 05/04/2021 20:52

I know this an old thread but just wanted to give it a bump to ask how you got on with your son's surgery Mudgling?

My youngest was diagnosed in spring 2018 and was operated on that winter. Can PM me if you need more details 😊

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