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Original poster

To ask about sandifers syndrome

5 replies

mum2three0 · 25/04/2019 09:49

Baby has GER and floppy larynx.
Noticed her head cocking to one side but now I'm noticing spasms.

Has anybody else experienced this? I'm so scared

OP posts:
Are your children’s vaccines up to date?
Set a reminder
foxyfemke · 26/04/2019 16:33

And you're posting here? I seriously hope you phoned the GP!

Original poster
mum2three0 · 26/04/2019 19:54

No, I never Hmm
Course I did! But it will take weeks to get a referral to see anybody so I was just asking on here

OP posts:
Paradyning · 27/04/2019 07:02

Don't wish to alarm but sometimes sandifers can be confused with Infantile Spasms and vice versa.

Look at this video.

IS is a medical emergency so if you do suspect her video footage and go to the nearest children's A&E. A GP won't help you. Or will delay treatment which needs to be fast. .

Paradyning · 27/04/2019 07:03

*get video footage

Paradyning · 27/04/2019 10:16

Don't go to a 'normal' a&e. You would need access to a paediatric neuro department and an eeg service.
@mum2three0

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