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please help - has anyone else experienced this before?

31 replies

NeedToRelax · 08/02/2018 01:05

Hi everyone, I am desperate for any reassurance or advice from anyone else who has had a similar experience ... on Monday afternoon my 5 week old baby boy choked suddenly and stopped breathing. This is what happened... myself and my mum took my 4 year old and 5 week old boys to the local playgroup. My baby traveled there in his pram which a car seat attaches to. Upon arriving at playgroup I got him out of his seat and took his layers off as not to over heat him...and held him the whole time we were there. This whole time he was asleep and seemed normal. After an hour or so my 4yr old decided he wanted to leave and go to nana's as planned. So I proceeded to re dress the baby and put him in his car seat. He had a bit of a wriggle, but seemed to settle. We started to walk up the road, and I noticed my son looked a bit red and was a bit bubbly and grunting, which at first I didn't find unusual as he has horrendous trouble trumping/pooing, so I just thought this was the same. A few seconds go by, and I realise that he is infact in a lot of distress and started to look slightly purple. I immediately picked him out of the seat and realised he was really really struggling to breathe. Then suddenly he turned a deep purple colour and his eyes started to bulge and his breathing stopped... we ran back indoors to playgroup as my mum called an ambulance and I started screaming at everyone that he had stopped breathing. one amazing mum took him from me, sat down on a chair and put him over her knee and started to hit his back, when suddenly he started bleeding from his mouth and nose. At this point I was absolutely frantic and crying and I thought I was watching my little baby die. My 4yr old stood watching on, looking terrified. The ambulance arrived and rushed me and the baby to hospital. We arrived in four mins and went straight to recussitation. time passed in a blur of oxygen, blood tests and X-rays as I stood by crying and feeling like I was going to lose him. they managed to stabilise him and sent him straight to the high dependency unit. He just looked so small and fragile on that big stretcher. once in the h.d.u he was put on proper oxygen up his nose rather than a mask. he was also linked to an I.v fluid drip for hydration and anti biotics. To cut an extremely long story short, he spent 14hrs in h.d.u and now we are currently on an isolation ward. He had a tube fitted into his tummy for milk as his lungs were working extra hard and the docs didn't want to worsen this. he has started to feed using bottles today but due to how sleepy he has been they wanted to continue tube feeding too. No infections were picked up on his bloods and I am confused as to why this happened. he hadn't fed before this episode, infact the poor thing would have been due his milk once we arrived at my mums. now I just don't know what to do. I don't want this to happen to him again, and the anxiety and general hysterical feelings of sadness and worry are all consuming. my heart hurts. once we leave hospital, how will I ever get over this? how will I rest knowing this could happen to him again? I want to protect him. the little noises he makes when he tries to poo or pass wind are all too similar to the noise he made when he stopped breathing, so there is no way I could possibly get on with anything or sleep without being on high alert. I want him to be ok and safe. please, if anyone could offer any wise words, share their experience or just hold my hand, I would be truly grateful. thank you. p.s I have missed a lot out but it's already very long what I have written and thank you if you got this far.

OP posts:
Are your children’s vaccines up to date?
NeedToRelax · 09/02/2018 08:14

Have phoned the doctors they are getting a triage nurse to ring back between 8:30 and 9:00, I insist they do something for him and won't be fobbed off. hopefully I will be back later with a better update.
cheers everyone x

OP posts:
NeedToRelax · 09/02/2018 11:47

they have given him infant gaviscon, I really had to bloody persist for it though as they initially said "ohh it's just trapped wind" and tried to play it down. At this point I told them the seriousness of what happened on Monday and that he had to be resuscitated, and that I fear he has a milk allergy / bad reflux. they said because he is a big baby and doesn't seem to be losing weight or have blood in his poo that it's definetly not an allergy... to which I just begged them to please help him to stop Mondays events happening again. so we are back home with the gaviscon, and he has had a bit with his feed but with him being up all night he is only having one or two ounces at a time as he is exhausted. i am going to contact the health visitor now as I still feel more could be done for him. it's like no one is taking his situation seriously, and as his mummy that really scares me.

OP posts:
stellenbosch · 09/02/2018 12:33

An intolerance doesn't always mean blood in poo.
Also, if he has reflux he might not be losing weight

Reflux babies often over feed to try to stop the burning feeling

Sorry they didn't listen

If he has a delayed puking/choking episode again (usually watery, two hours after feeding) I'd take him back to a and e or back to doctors and refuse to leave without Neocate

😢

NeedToRelax · 09/02/2018 13:23

I agree 100% I will also see how he goes on the gaviscon too any hopefully he will find some relief with that. I have just got off the phone to the health visitor and she said because he was a c-section baby that can often cause a bad build up of mucus for a good few weeks after birth, and that his body is expelling it through his poo and sick, and perhaps that's what came up when he choked. The lady who cleared his throat/nose noted a bit of mucus coming out.

I am just going to keep an extra close eye on him, and of course if he doesn't settle will have him straight back to the docs regarding his milk. He's catching up on his sleep now bless him after his tough night. His little routine that he was in is all over the place poor thing. I'm going to catch up on some rest now too,mans hopefully his night is more settled tonight.

Thank you for coming back to post it really is helping me having different opinions to weigh up our options, and the support here has been brilliant xxx

OP posts:
onemoremummy · 18/02/2018 08:59

OP, if you can afford it, why don’t you see a private paediatrician? I find they will really take your seriously and help you at least with information that might lead you to getting a GP referral on the NHS. In your situation I really would.

LondonLassInTheCountry · 19/02/2018 20:53

Could it be restricted airways due to being in the carseat? Just a suggestion

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