My son was recently diagnosed with minor Pierre robin sequence. We stayed in the hospital for 2 weeks until they decided he had this. He had numerous tests done and a sleep test. When I called to make the appointments the lady said she'd get back to me in a few days, but it wasn't even 24 hours and she called back. She said that craniofacial wants to see him asap and want us to see ENT again and want to discuss sleep test. No ones has told me why they want to see him asap. Should I be worried because they want to see him and discuss sleep test? Do you think there could be something wrong? Why else would they want to see him asap after they've seen him 5x when we were there? I have 16 days until we go and all I'm doing is sitting here freaking out.