It's all incredibly slow with growth problems - DD is 7.5 and we've been seeing the endocrinologist since she was 2.5 and still don't have complete answers.
What tests have they done so far?
My DD fell from 97th centile (her genetic predicted centile as DH and I are both tall) to 4th centile by the time she was 2. She's now on 9th centile and has been for 18 months. Way below where she should be, but the consultant is pretty happy.
Her latest bone age x-ray showed a 2 year delay and her IGF-1 levels are just detectable (for the first time ever).
Despite no complete answer and being well off her genetic centile, we're moving to appointments every 18 months with a repeat of blood-tests and x-rays each time, and not attempting to treat or diagnose unless she stops growing again.
We had the usual gastro battery done, loads of assays for growth hormone markers plus karyotyping for Turners and a stim test for growth hormone done in the first 2 years, but it's all very slow as they only like to measure at 3 month intervals (private and NHS were the same on that).
I would push for more investigations on the gastro side rather than the endo.
The Magic Foundation in the US is quite helpful, and there are some good FB groups for different conditions.