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Mumsnet hasn't checked the qualifications of anyone posting here. If you have medical concerns, please seek medical attention; if you think your problem could be acute, do so immediately. Even qualified doctors can't diagnose over the internet, so do bear that in mind when seeking or giving advice.

Three year old twin with severe plagiocephaly
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NoMoreStickers · 13/06/2016 10:33

I have twin daughters, just turned three, one of whom has a severe plagiocephaly as she lay on one side of her head only as a baby due to a large angioma on one side of her head.

We were told the shape would appear less severe over time but if anything I notice it more as they grow.

It's particularly visible when her hair is wet or she request pigtails etc.

It actually goes through me a bit to wash her hair as the flatness feels so extreme.

I was blasé up until now but I'm starting to worry that growth won't 'soften' the sharp angle.

Children can be so cruel and her identical sister is unaffected which makes it doubly hard due to comparisons.

Have any of your dcs improved with time after 3?

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GloGirl · 14/06/2016 13:05

Could you see a private firm who specialiseemingly in plagiocephaly othortics?

I can recommend Technology in Motion. Consultations are free and I'm not sure what can be done for a 3 year old. My son also had a paed referral so you could speak to the GP.

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NoMoreStickers · 14/06/2016 17:48

She'll be too old for a helmet now I'm afraid, we've already been told

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GloGirl · 14/06/2016 18:13

Normally they say under a year, i just wondered if they would have any more advice or words of comfort for you as they are experts in plagiocephaly. Sandy in the North West was very friendly and genuinely cares.

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