Hi - I can't find one running st the moment, the last one was last posted on in 2013. It would be great if anyone is in the same boat.
We found out last week that our gorgeous 16 month old has bone marrow failure. Initially they thought is was myelodysplasia but have now found leukaemia cells so have indicated aml. We are in on Tuesday to fit his Hickman line and do another bone marrow test. Chemo is likely to start imminently. We are all in shock and constantly up and down. It's easier during the day with the distraction of the children but nights are long. I am so worried for my baby and I don't want him to be in pain. I am so scared too.