Hi,
I've had a look and can't find a thread for parents with children on chemo? So I thought I'd start one!
My nearly 7 year old had his 7th dose of chemo on Wednesday. He's on a three week cycle of Carboplatin and Vincristine, the course will take 18 months.
He was diagnosed with an optic nerve glioma just over a year ago. It's a Low grade tumour so initially we were on a watch and wait plan, things changed when growth was spotted on MRI in August.
The last month or so have been pretty up and down, we've had long phases of Neutropenia, A platelets transfusion and he's actually currently laid on a hospital bed having a blood transfusion ( I'm sooo bored, he's happy watching a film!). His hair has been falling out for the last couple of weeks, but seems to just be thinning at the moment.
Anyone out there?! Fancy swapping stories?!