Floppy larynx HELP

[Amy95]

So basically I'm new to all of this , ds was recently diagnosed with floppy larynx he's only 13 weeks the last 2 or 3 times he's been weighed it's shows that he is putting on weight but very slowly the hv I have looks down on me because I'm young , he can only drink 5oz every 2-3 hours no more other wise he will get very upset , when he's drinking it seems that he gets very tired easily , he's going to be prescribed milk now ' Infatrini ' is there any one who has gone through this ?

Is this the same as "stryder" a soft wind pipe?

It sound like x

They can grow out of it. But yes they can get tired feeding, but 5oz every 2-3 hours seems fine.

My DS1 was born with stryder, and was the same with feeding. He also used to squeak when crying. He saw a specialist until he was 6 months when it had then became "normal". He's now 12 and hasn't had a problem since.

He always very squeaky when people see him they always worry he's struggling to breath :( x

I used to get the same. If he's anything like mine it doesn't stop him being a cheeky monkey

Don't let people judge, and don't take it to heart if they do. I hope it strengthens soon as my boys did and you will never look back.

It's horrible the way people look at him , I feel so sorry for him but he's a very happy baby always smiling , Thankyou x

Ds2 and ds3 both had this. Ds2 was very "sicky" and had difficulty breastfeeding as he got so tired and wasn't gaining weight and I kept getting mastitis as he wasn't feeding properly. He managed better once we started topping him up with a bottle. He had outgrown it by 2.

Ds3 had a bad start and was in HDBU with chest drains and was tube fed to start with. He never managed EBF had top ups once I could feed him. Although he lost a lot of weight at first, once he was home he grew like a weed. He had a lot of croup in his first couple of years but is now 8 and a completely healthy child although he still has an expiratory grunt and is a but prone to coughs.

It's such a worry when they are little!

I remember the looks we used to get. They were pity looks. My son used to sound like a helicopter you could hear him downstairs when he was asleep. It was worse when he was sleeping. I second the reflux because he struggled to keep feeds down.
He's six now and he's fine he just grew out of it however he does snore at night which I think is due to that.
I completely feel for you I remember going through this and it's hard because some health professionals don't take it seriously. Try not to worry hopefully he will grow out off it.

Thankyou everyone I'm not the only one , ds is the same he's very loud bless him some people judge to quickly x