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DS2 off to his first Rheumy appointment

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CouthyMow · 21/01/2014 08:38

DS2 is 10yo. He has severe hypermobility syndrome, and a whole host of co morbid issues. His Physio has referred him to a Rheumatology.

What should I expect? He has multi-systemic involvement with the HMS. (Respiratory, bowel, muscular, skeletal...)

I am living in hope of an Ehlers-Danloss diagnosis, as it's obvious that that is the issue.

What will the first appointment entail? Will there be blood tests?

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