My beautiful Joseph with his blue eyes, ready smile and arms always open for a hug or a tickle fight

[Trazzletoes]

He has survived the most horrific cancer treatment with his smile, joy and love intact. Unfortunately the neuroblastoma has survived too.

Thinking of you all.
Like so many others, I would do anything I could to help.

Trazzle, there are no words I can say that would in any way help, or be wise or even apt.
All I can say is that you and yours are continually in my thoughts.
Sending love x

Trazzle - I so didn't want this post to be by you/about Joe

Wishing you every ounce of strength to deal with the days, weeks and months ahead. And know that we are all here for you if there is anything that we can do.

xxx

So so very sorry to hear this news Trazzle. Thinking of you. X

Trazzle - another one delurking, and sending love.

Sending love and hoping for miracles for joe. X x

I've only posted once before to you, but you have all been in my thoughts and prayers since your first post. I'm so sorry about this devastating news and want to send you all love and strength.

As others have said please don't hesitate to ask for anything we can help with, there will be a queue of offers.

xxx

Trazzle - I so wish there was some kind of 'love'o'meter' or 'support'o'meter' so you could really see and feel just HOW much we all care. Please let us help?

Also (& I am so sorry if this is a stupid question/assumption), but when you say 'Joe is at the lowest point, healthwise, in his treatment protocol so other treatments may not be an option as he is so vulnerable right now, does that mean he will regain strength now that treatment protocol that he has already been through has abated?

And I know so many others have said this in reply to you already, but I have to join them... Only YOU know what is right for your son and what decisions you should make now. The one thing I can PROMISE you is that NO-ONE will 'judge' you - quite the reverse. You are awe-inspiring, an amazing Mamma, & your strength - and love - in the face of this has been nothng bar inspirational. Am thinking of all of you constantly. Stoic xxx

Always here for you Trazzles, so much love to you all Xx

It has all already been said but bloody Hell I am so so sorry things have taken a turn this way , for every one person that posts there are at least a dozen others who are standing with you through this .

Many people hoping and crossing gingers for Joe and his wonderful family .

so very sorry to hear this.

Agree expat that you need to find the right trial given the specifics of each individual patient. Also, further treatment may not be an option for other reasons.

However, MSKCC are the largest neuroblastoma treatment centre in the world and to my knowledge don't often seem to turn people away as they have so many trials on-going at any one time. However, they are very very expensive and although they have better outcomes than most centres, a cure is never guaranteed as it is such an aggressive disease.

Another option is CHOP in Philadelphia, but I am not sure if they have any trials open to refractory neuroblastoma patients, ditto with Greifswald and the Tübingen.

Possibly The Neuroblastoma Alliance may be able to help with finding a trial.

Sending huge amounts of love to you all xxxx

If a trial is in fact open. But for now, it is dependent on what the team and Trazzle and Joe's father decide together. They know their child and his condition more than we. So all love, support and strength to them all :). Have been there, Trazzle, albeit with a different cancer, and just want to let you know we are here for you and Joe. No matter what.

I'm so sorry to hear this. My thoughts are with you x

((((())))) Trazzle. I'm so so sorry to hear this terrible news. I've been praying for Joe for months and I will continue to pray for you all in this terrible terrible time. I wish there was something I could do for you all but everything I think of seems so insignificant, just like my words. I hope that you have been able to enjoy your weekend at home together with smiles and laughter. We are all here to help and give you whatever you need. Just ask.

So sorry to hear this. Wishing you all strength and love. Ps I have a pingu pyjama case soft toy thing about 2 foot long. He is welcome to it if you would like.

De-lurking. Not much more to add from what has been said already. Except there really is a small army of us here if you need anything.

Oh Trazzle, hugs to you all. Praying for your beautiful boy. :(

Oh Trazzle, so sorry to hear this. I often think of Joe and you all.

Please, if there is anything we can do for you and your lovely family, do ask.
Sending hugs and much love to you all.

Trazzle, I have nothing to say that everyone else hasn't said better, but am so so sad to hear this. Holding you all in the light.

Trazzle, it's good to know that you have a team around you, who can guide you as to the best steps now. I agree with expat, those decisions are to come.

Anyway, how were those penguins?

Sounds like you'll have a tough day tomorrow with hard discussions. I will be thinking about you all day as I was today, and I know there will be hundreds of us, all holding you and Joseph and your family in our thoughts.

Sending love (and happy penguin thoughts) to you all. Thinking of you, Joe and all his family and friends x