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My beautiful Joseph with his blue eyes, ready smile and arms always open for a hug or a tickle fight

999 replies

Trazzletoes · 14/04/2013 08:13

He has survived the most horrific cancer treatment with his smile, joy and love intact. Unfortunately the neuroblastoma has survived too.

OP posts:
Are your children’s vaccines up to date?
pageturner · 14/04/2013 14:52

So sorry to hear the latest news. I have followed your threads and send all positive thoughts and vibes possible. Thinking of you all. x

squalorvictoria · 14/04/2013 15:03

Coming out of lurkdom to say how desperately sorry I am to hear this news. There are no words to express how cruel and unfair life can be. Sending you so much love and strength.

nothruroad · 14/04/2013 15:04

I am so very sorry to hear this news. You and your family are in my thoughts and prayers.

MintyyAeroEgg · 14/04/2013 15:14

Oh Trazzle! heart is hurting for you so very much x

lunar1 · 14/04/2013 15:15

I have followed your threads from the start and am so sorry to read this. Please if there is anything you need we are here for you.

DuchessOfAvon · 14/04/2013 15:26

Trazzles - I am still here if there is anything I can do. Still can't think of anything remotely useful but I am here.

FriskyBivalves · 14/04/2013 15:27

Trazzle, I have PM'd you. I am so very sorry to hear your latest update. Please ignore the stuff in the PM about the cot...duh.

Startail · 14/04/2013 15:29

Tazzle, there are no words. DD2 is mad on penguins, I hope Joe enjoyed them.

Annunziata · 14/04/2013 15:29

Praying for you and your lovely wee boy x

ClaraOswald · 14/04/2013 15:32

Trazzle, I am so sorry to read this.

monkeyfacegrace · 14/04/2013 15:38

Trazzle.

I have access to a holiday cottage in a little village in the Cotswolds called Painswick.

Its really beautiful.

I can also get you tickets to Cotswold Wildlife Park, which has flocks of flamingos, and pengins that you can get close enough to touch. (google it)

Also, there is a lovely swimming pool locally, and sea life centres, and a gazillion other things to see and do within about an hours drive (I have a seven seater car and can drive you around at your request if you dont have your own car).

Say the word and I will reserve you a few days stay. Free of course x

CabbageLeaves · 14/04/2013 15:41

Trazzle I'm sure you are overwhelmed. I wish you and yours, a calm time and much love and support to help you through.

JulesJules · 14/04/2013 15:49

sending love xx

Ginismyfriend · 14/04/2013 15:52

Trazzle I have been following your threads and not known what to say, but you're a truly amazing mum. I am hoping and praying for you all. Not far from Leeds so, as lots of other people have said, I will help however I can.

narmada · 14/04/2013 15:52

Oh no, what a terrible time. Life is so cruel. I would be willing to contribute anything too, but I get that material things are only a sticking plaster.

If you decide agsintst further treatment then no-one would blame you. At all. And if you decide to go to MSK in the states, if eurodisney looks even slightly possible, whatever, I can only reiterate what others on here have said - we will help to make it happen.

ReluctantlyBeingYoniMassaged · 14/04/2013 15:56

Thoughts from Wakefield xx

elliepac · 14/04/2013 16:02

trazzles words seem inadequate right now but please know that i am thinking of you and your beautiful Joe and your lovely family. I send you my prayers and my love.

Jollyb · 14/04/2013 16:04

Am so sorry Trazzle x

expatinscotland · 14/04/2013 16:04

MSK treatment may not be an option. It depends on the type of neuroblastoma a person has, as to what their treatment options worldwide are. Also, some treatments are only offered, worldwide, to those who have exhausted worldwide protocol.

I'm sure the consultant will know, but without knowing the particular case it's hard to say.

This was true in our daughter's case, different cancer, obviously, but there was a trial (now suspended as it failed) for those who had already undergone stem cell transplant and had relapsed. It was not open to others. We had others posting about treatments that would not apply to her. It's nice, to give that hope, but it wasn't really a hope for her because it wasn't available to her due to her form of cancer.

Similarly, some treatments you read about, and I'm thinking of a personal friend of mine, the treatment is not known to be a cure. It is to hopefully prolong life, and so some decide the risk and quality of life following treatment may outweigh benefits.

Again, a decision for the parents to make with their medical team and I wish you all the strength in the world, Trazzle.

CuntAlors · 14/04/2013 16:06

Oh trample, I've been thinking about you and I'm gutted to read this thread. Much love, thoughts and prayers to you and your family. X

CuntAlors · 14/04/2013 16:08

Bloody auto correct - trazzle, not trample. Sorry.

TheCountessOlenska · 14/04/2013 16:22

De-lurking (again) for the new thread. My thoughts are with you Trazzle and have been all day xxx

PseudoBadger · 14/04/2013 16:23

Trazzle, I've been writing posts all day and deleting them, as they all sound inadequate and empty. All I can do is say how very heartbroken I am for you all, and I wish that there was something that MN might could do to make Joe better, and give him his time that he so deserves.
I have a small cuddly penguin that I'd love to send to Joe, if he'd like it please please let me know xx

Trazzletoes · 14/04/2013 16:30

Thanks expat you are right. Also, Joe is at the lowest point, healthwise, in his treatment protocol so other treatments may not be an option as he is so vulnerable right now.

I have no problem with people posting information though. It doesn't give us hope, IYSWIM, just more to discuss with his consultant.

OP posts:
StealthPolarBear · 14/04/2013 16:47

Trazzle, what can we do, how can we help? I know you probably don't want to do any thinking you don't have to do, but if something comes to you, just post on here.

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