My beautiful Joseph with his blue eyes, ready smile and arms always open for a hug or a tickle fight

[Trazzletoes]

He has survived the most horrific cancer treatment with his smile, joy and love intact. Unfortunately the neuroblastoma has survived too.

Oh Trazzle, have been lurking on your threads and am so gutted to read this. You are very much in my thoughts, all of you. Sending very many positive vibes to you and extra for Joseph. xxxx

So so very sorry to hear this. I am Leedsish too if you need anything at all xxx

Trazzles, I'm so sorry to hear this awful update.

I'm here with chocolate, and but would love to do something more practical to kick the bastard cancer into touch.

Tomorrows meeting is going to be tough no doubt, gingers are staying firmly crossed and thoughts are with you all.

Xxxxxxxx

Am so very sorry. Thinking of you all. xx

Oh sweetheart I'm so sorry to hear your news about Joseph.

Can I out you in touch with these people please
Www.reubensretreat.org if you wanted someone to talk to who has been where you are now. Nicola, Reuben's mum is an amazing woman, and the retreat was set up to help in situations like yours. Iirc I think you're also not very far away from her either.

Not much else I can say to you, but sending my love to you and yours. Cancer is an evil bastard.

Trazzle - praying for Joe, and all of you x

Thinking of you x

So so sorry to hear this. Sending you love and prayers from Lancashire.

Frazzle, I'd second what was saify thread about some sort of mnfund to get Joe to DLP if it's feasible health wise. I've followed your progress and wanted to just send you a big hug. I've PMed you too. X

Trazzle, flipping iPad.

So sorry to hear your very sad news . So soul destroying after everything Joe and your family has gone through.

Dylan Hartung had refractory neuroblastoma and could not be treated in Australia but was treated at MSKCC and is now classified as stable. He was diagnosed as refractory at five years old and is now classified as stable at 14 years old after treatment at MSKCC.

Dylan's blog in which his mum describes his treatment at MSKCC

Thinking of you all x

Trazzles, I'm not far away from Leeds and if there is anything I or other local MNetters can ever do anything to help, please let us know. Not just now, but anytime, however small or big.

Am thinking of you, Joe, your DD and the rest of the family.

And I'd be in for helping Joe get to DLP if there was any way we old help make it possible.

Much love.

Trazzle - I have followed your threads for a while. I don't know what to say but couldn't not say anything. So desperately sorry to hear the latest news. Will keep praying for you all.
You are amazing. Now is the time to ask, we cannot give you what you want most but ... there are so people on here thinking of you.

Trazzle - So sorry to hear this. You have been in my thoughts.

Trazzle - I cannot find the words to express how deeply saddened I feel for you and your family right now.

Sending love to you all. xx

Sending you all lots of love. I have some experience of what you're going through (but at the beginning of a diagnosis) & feel so sad for the pain you must be feeling. I hate that so many children are going through this. It's not fair. Take care x

Thinking of you all xx

I am relatively new to MN and new to Joseph's story but I'm delurking to say how sorry I truly feel. I don't have any other words to say. This must be so devastating.
x

Just got back from holiday and I can't adequately express how very, very sorry I am to read your most recent news. Still praying hard and sending you all strength for tomorrow's meeting. Hope Joe enjoys the penguins today xxxxx

I'm so sorry I truly am, there are thoughts and love being sent to you all from a small windy bit of the East Coast x

I am so sorry to hear that. Sending you all much love & strength. x

Btw I don't know how long Joe has been in the wheelchair but if you don't yet have wheelchair-accessible transport of your own, I have a van with a wheelchair lift in it which can go all the way to Disneyland Paris if it needs to.

Thanks for the wheelchair info and offers. It's very kind of you.

Although he is the size of a 5 year old and unable to walk he miraculously still fits in our double buggy so that helps too.

It's very kind of you though.

Trazzles the title of your thread is beautiful. Really truly. Your words are so vivid I can picture him and the delightful boy that he his.

I'm so very, very sorry to read the latest news. I think you are very brave and know you will make all the right decisions for Joe.

To add to the chorus of voices I too would be willing to contribute to ensuring that Joe has his whims met, that you have yourself supported and that your family feel like they aren't alone. Practical stuff, experiences, driving elderly relatives from the south, tea, playmobil, stickers, penguins, fundraising. I, and many others, can do that and will do what we can to help you.

PS love that DD rubs his head - I've got a lovely video of DS4 rubbing his hands and face on his father's head when he is putting on his shoes. Very special