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Original poster

My beautiful Joseph with his blue eyes, ready smile and arms always open for a hug or a tickle fight

999 replies

Trazzletoes · 14/04/2013 08:13

He has survived the most horrific cancer treatment with his smile, joy and love intact. Unfortunately the neuroblastoma has survived too.

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Are your children’s vaccines up to date?
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Nooneelseisallowedafergus · 22/04/2013 19:50

Dear trazzles, thinking about you and joe often. Hoping you can feel some supportive energy from all the people who are mentally hoping and wishing for the best for joe and all the people who love him. I am so sorry you are going though this horrendous nightmare. It is so wrong and unfair, and completely impossible to 'get your head round'. Life can be very cruel. But joe is loved and that is the best gift you can give him. X x

bobkate · 22/04/2013 21:15

Once again, I keep writing, deleting, writing, deleting. I'm just so very sad for you all. I think of you daily, you and your DH, little DD and of course, brave Joe xxx

expatinscotland · 22/04/2013 21:34

'Begin at the beginning,", the King said, very gravely, 'and go on till you come to the end: then stop.'

Sad
whymummywhy · 22/04/2013 21:38

Yet another delurker here just wanting to say that you are all in my thoughts and prayers every day...I am so very, very sorry that Joe and your whole family are going through this...love and strength to you x

JugglingFromHereToThere · 22/04/2013 22:18

That's beautiful expat, though very sad Sad x

TheOldestCat · 23/04/2013 11:35

Thinking of you Trazzle. x

Goldmandra · 23/04/2013 12:23

I don't know how I can live with myself for making the choice, whichever one it is.

I know that, like many mothers, you probably feel that, ultimately, the buck stops with you but you don't need to make these decisions in isolation.

Use your family and friends shamelessly as a resource. Bounce thoughts and feelings off them to help make sense of things and do the same with the medical staff.

When DD2 was in hospital a lot last summer (nothing like what you're dealing with) one of the sisters on the ward was wonderful. She helped me think through where we were at and the implications of what we were doing. She was very skilled in looking at things logically and clarifying my thinking for me. Is there someone similar you can approach to do the same? You probably only have to ask.

Don't carry this burden alone because to do so could be really destructive. Your well-being is really important for Joseph and the rest of the family as well as for you and you have every right to lean on other people as much as you need to.

Do you have a children's hospice you can be referred to? They can help in a million ways you might not have even thought of including helping you to talk things through.

StealthOfficialCrispTester · 23/04/2013 13:20

Still thinking about you x

Badvoc · 23/04/2013 13:31

Thinking of you trazzles x

NotAQueef · 23/04/2013 14:27

Haven't been on here for a while, but just wanted to let you know that you, your family, and of course Joseph are often in my thoughts.
So sorry you are all going through this x

ninja · 23/04/2013 19:15

Always thinking of you. You can't make a wrong decision. I'm so sorry you have to make one x x

Almostfifty · 23/04/2013 20:08

As Goldmandra says, Children's Hospices are amazing, should the results show that there's nothing you and the specialists feel is worth putting Joe through. I am lucky enough to volunteer in one and it's just the most wonderful place.

They have the support and knowledge needed if palliative care is what you decide is best for Joe.

I am another that is in awe of you and other families, for your strength to get through each and every day.

SantanaLopez · 23/04/2013 21:00

Always thinking of you x

maxmissie · 23/04/2013 21:03

Thinking of you, Joe and the Trazzles family, sending you lots of love and hope and strength. So sorry that you will have to make a decision you don't want to make.

Alibabaandthe40nappies · 23/04/2013 21:22

Thinking of you every day Trazzles x

HairyPotter · 23/04/2013 21:43

Holding you all in my thoughts. xx

Gumgardener321 · 23/04/2013 22:46

My thoughts are with you all xx

Elibean · 24/04/2013 11:16

Another one thinking of you, Trazzles xx

TiredFeet · 24/04/2013 11:33

thinking of you all, I wish there was something I could say or do that could make it all better. I will think and pray for Joe and all your family. There have been some lovely and wise things said on here. I hope you are getting lots of support in real life too xx

upto11 · 24/04/2013 12:19

Just as ninja says, you can't make a wrong decision, and I'm so so sorry you have to make one. You are in my thoughts every day xx

SocialGrace · 24/04/2013 16:32

Trazzle, I'm so, so sorry to hear this; this is beyond anything - sending love and thoughts to you and Joe. x

SarahJinx · 24/04/2013 20:14

I'm not sure you can even begin to come to terms with it Trazzles, you can only cope, and love your boy and do your best for him, like you've done all the way through this. Whatever path you choose will be what's best for Joe.

Always thinking of you x

MrsFrederickWentworth · 24/04/2013 20:37

Just sending love.

ChippingInLovesSpring · 24/04/2013 20:58

A lot more love & a lot more strength being sent. I'm thinking of you all every day and wishing we could make Joe better, but I don't want to clog the thread up, so not posting too often, but you are in my heart xxx

Millie2013 · 24/04/2013 21:53

Still thinking of you all too. I hope that you can take some strength from the fact that there are so many people on this thread offering so much love xx