High dose chemo and beyond. Onwards and upwards hopefully!

[Trazzletoes]

Another continuation thread for Joseph's ongoing fight against the aggressive cancer, neuroblastoma.

I can empathise Trazzles about work. Just go easy on yourself. You've been through such a lot and getting Joe home is a massive step forward but the amount of appointments coming up shows that there's still lots more work ahead. You need to make sure that you don't take on too much.

Catching up on so much good news all in one go.

I am keeping all possible digits crossed for home on Friday.....

So pleased to hear yet more good news, Trazzles; keep it coming!

Tea said it perfectly

Well he's had to be on oxygen again overnight so hold that excitement.

Dammit I just want us all to be home

How frustrating. How low do his sats drop?

Have you asked if you could have a monitor and some 02 cylinders at home for the odd occasion? Probably a long shot, but I've known it to be done in the past.

:(

Poor you, and poor Joe It may be two steps forward, one step back, but try to focus on the 2 steps forward if you can, and you'll get there x

So good to catch up on all the good news about Joe, and that your eye is ok. What a complete fuckbummer (?) that going home is not quite so near now. Exhausting and cruel for you. I'm keeping everything crossed that it's a small setback and you are all home together very very soon.

Ah crap :(
Sorry to hear that.

Sorry to hear that too - he is making progress overall though so focus on that if you can.

Much love as the rollercoaster continues.

Right. As I suspected it appears to have an equipement malfunction. Now I just have to convince the Doctors... This is not going to be easy...

ooh fingers and gingers all crossed x
Great news about your eye though and that Joe is progressing so well - keep going trazzles....are they the splodges at the end of the tunnel shining away?

Bloody hell! Don't they know what's riding on them functioning properly!! Good luck

Could you just not say that you've got some mumsnetters who'll come round if they don't let Joe home?

After all of the media noise over the last few days we should be able to use our collective force to jailbreak our Joe

Seriously. Really glad the machine was faulty in that it means Joe is ok

media noise over last few days.... wha? have I missed summat???

Trazzle, all fingers crossed.

I hope it was the machine at fault and not Joe desaturating. Fingers crossed a more reliable machine is in-situ for tonight. Xx

Hope it was the machines. With ds a lot seemed to depend on his position, and how securely the finger thingy was attached xx

Hi. I'm sorry for being cryptic but I can't say anymore right now... But please, if you have any faith, please please please pray for my beautiful, happy, loving blue-eyed boy. He might well be more unwell than we thought.

Sorry I can't say more at the moment. Please hold him in your hearts tonight and especially tomorrow.

I'm thinking of you and your little boy as always. Sending many many positive thoughts xxx

Oh :(
I will pray as hard as I can.
Holding you both close x

Trazzles, he is held very closely in my heart just as you, your Dh and DD are too.

I'm not one of any faith, but my gingers are crossed and my positive thinking is heading your way.

Wish I could do more, but I'll be checking in for any updates tomorrow.

Xxxx