High dose chemo and beyond. Onwards and upwards hopefully!

[Trazzletoes]

Another continuation thread for Joseph's ongoing fight against the aggressive cancer, neuroblastoma.

[NorthernLurker]

Just keep going Trazzles. It's boring and miserable and scary but it's going to be just a memory one day.

[dikkertjedap]

Suffice to say, it is very important for your own health that you can drink. Is there any way you can hide a bottle somewhere and drink it with your back towards him? Alternatively, you may have to explain to him that you have to drink as otherwise you will get terrible headache because you don't have a tube with fluids (I know not nice, but nobody will gain if you become unwell).

Sorry about his tummy -really hope the doctors can find out asap what is going on.

[NorthernLurker]

x posted.

Now look - yes it might not work, yes he might relapse but you KNOW you and he have thrown everything you could in to this. There's nothing more to be done and whatever happens don't regret that you've been through this time. This time is you and Joe fighting as hard as you can and that's worth doing. Faint heart never won fair lady

You can spend hours on ifs and maybe and should have but really all you've got to do is play the hand you're dealt.

[Trazzletoes]

I know. I'm sorry. Just having one of those days. Bed, here I come.

[NorthernLurker]

Don't be apologising either Hope you get a decent night

[MelodyBaker]

trazzle sorry that today's been hard. And sorry joe is in so much pain. Soon,joe will have beaten this and your family will wake under 1 roof together.
Fingers firmly crossed

[dikkertjedap]

Try to take one step at the time.

So far, Joe has done tremendously well. I think it is important to believe that he CAN AND WILL DO IT.

IF he does relapse, you will need to consider available options (GOSH has a trial going on, then there is the clinic in Germany and several places in the US). But for now, in spite of all the current difficulties, he has done very well.

I totally understand your worry, but there is nothing you can do except taking each day as it comes.

Really hope Joe and you can have a good rest.

[NorksAreMessy]

You NEVER need to apologise here.
This is a safe place for you to rant, be pissed off, be less than perfect, we will NEVER criticise you or judge you or tell you off.
Whatever you do is the right thing to do. You are dealing with unimaginable crap and continue to do so with grace and humour and stoicism.

But now you need to go to bed.
Here is a kiss on your forehead x

[IwishIwasmoreorganised]

Blimey, what a tough day. So many unknowns still.

Your mind is bound to be going through every possible scenario, that's what we do when we love someone.

You're all giving everything you can to fight this bastard disease. No- one can ask any more of anyone.

I hope that you can find a way of Joe understanding that you do have to drink, you're under such a lot of strain that keeping yourself well hydrated is very important (end of sermon).

Sleep well both, hope tomorrow is a little easier.
Xxx

[Seabright]

Rant away on here, say whatever you want to. And sleep well.

[LegArmpits]

(((((Trazzles)))))

[ninja]

Dear Trazzles, please don't apologise. I can't comprehend what you're going through and you're still keeping going amazingly

Joe's done so well and is fighting so hard and so are you.

Sorry - really don't know what to say. Just wishing you some sleep x x

[barefootcook]

Trazzle- just wanted to say I am thinking about you guys and hope you get some sleep and there is more good news in the morning. Try and stay positive and keep the goal in sight. You have done so well and must keep on fighting for your little man's life. There is no option! xx

[kohl]

Trazzles you are magnificent. A huge splodge and a tonne of sustaining and healing wishes from Cambridge.

[Cookingupastorm]

Well done Trazzle..another day done. Sleep is a good way of giving you that extra bit of strength to walk another step. My brother's little boy went through a dangerous,painful and life threatening illness when he was 3, these days he remembers none of it..my db of course went through living hell and he said his one saving grace was keeping the absolute belief that his son would get better. Keeping you in my prayers x

[FoodieToo]

Saying hi to you both from Dublin. I read your updates every day and am amazed at your courage and good temper.
I am so sorry you are going through this.
I really,really think you will have a good outcome.
My thoughts and best wishes x

[ajandjjmum]

I just wish that all the love and wishes sent by mumsnetters everywhere could guarantee the result we're all praying for.

[ajandjjmum]

And this can never be for nothing. You're fighting with Joe as hard as you can, and you'll never regret that.
xx

[SPBInDisguise]

Oh trazzle you've got me in tears - not a good look for starting work. You sound utterly worn out, and poor little j in pain and discomfort. You'll look back and wonder how you managed to get through it but you are and you will. And no chocolate Aaargh ( think that's the real reason for my tears).

Please remember this thread is for you, not us. For you to share or offload if it helps, or just pop on for sympathy and mindless chat if you'd rather not think/speak. No one is demanding an update. Only share all the details if you want to xxx

[SPBInDisguise]

But really, no chocolate

[ToffeeWhirl]

I'm so sorry for your grim, grim day, Trazzle . I hope so much that things improve from now on. X.

[Almostfifty]

Hope you've both had some sleep Trazzle. That's another day over with.

[saffronwblue]

Trazzle I am so lost in admiration for you, JO and your DH at how you all get through every day, hour and minute. This is tough, horrible and testing to a level I cannot imagine. I hate to think of you sitting there feeling worse because you can't drink in front of your little lad. What a wonderful mother you are. Big splodge from Melbourne.x

[MaggieMaggieMaggieMcGill]

Hope today is a better day in anyway that it can be. Splodgy things from north London.

[dikkertjedap]

Hope you have all managed to get some sleep and that today will be a better day for the Trazzles.

Also, hope that you can find a replacement for your chocolate (not sure what it could be though).

and a