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Children's health

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Original poster

High dose chemo and beyond. Onwards and upwards hopefully!

999 replies

Trazzletoes · 25/02/2013 21:42

Another continuation thread for Joseph's ongoing fight against the aggressive cancer, neuroblastoma.

OP posts:
Original poster
Trazzletoes · 05/04/2013 09:26

There's still a long way to go. He needs to be:
Off his pain meds
Off his I/v feeds
Liver better
Not needing oxygen overnight
Ideally off I/v anti-fungals.

So still a while off. But people are starting to think about it!

OP posts:
GlaikitHasHerFizzBack · 05/04/2013 09:36

Oh trazzles, that is wonderful news. The fact they can see it happening is fantastic! Tiny steps but you and joe are getting there! :)

ToffeeWhirl · 05/04/2013 09:40

Grin Grin Grin

Fab news!

SocialGrace · 05/04/2013 09:45

Very, very encouraging - come on all the Trazzles! Grin

ninja · 05/04/2013 09:52

That's fantastic to hear, lots of steps I know but hopefully all in the right direction Smile

BarmeeMarmee · 05/04/2013 10:43

Woo hoo! Another step in the right direction Grin

Original poster
Trazzletoes · 05/04/2013 11:36

normal bilirubin is 20 or less. Wednesday Joe's was over 100. Yesterday: just over 90... Today 57! Squeeeeeee!

OP posts:
Badvoc · 05/04/2013 11:46

Whoo hoooo!!
(Quietly)
:) :) :) :)
X

TeaMakesItAllPossible · 05/04/2013 11:48
Grin
GlaikitHasHerFizzBack · 05/04/2013 11:56

I have no idea what bilirubin is but yay!

LillethTheCat · 05/04/2013 11:58

Sounds like things are progessing in the right direction. Hope he continues to improve

GlaikitHasHerFizzBack · 05/04/2013 11:59

bilirubin hope you don't mind me posting this trazzles?

BarmeeMarmee · 05/04/2013 12:20

Saying nothing but grinning quietly. Go Joe!!

Original poster
Trazzletoes · 05/04/2013 12:21

Not at all fizzy

Sorry, it's a liver enzyme and it being so high was what had alerted the Drs to his poorly liver. Hence it going down is a good thing.

OP posts:
Almostfifty · 05/04/2013 12:50

Lovely news. Keep it up Joe!

BehindLockNumberNine · 05/04/2013 13:44

Staying very quiet but grinning like a demented loon Grin
Keep it up Joe's liver, you are getting there!!

Will go off and eat a chocolate brownie in celebration (so fallen off the mfp wagon it is not even funny)

hellohellohihi · 05/04/2013 18:20

Shhh. Absolutely fan-bloody-tastic. Shhh.

Big kisses xxx

Original poster
Trazzletoes · 05/04/2013 18:44

Eek I have even more exciting news!

(No, we're not going home)

OP posts:
GlaikitHasHerFizzBack · 05/04/2013 18:47

What, what

onedev · 05/04/2013 18:48

So pleased things are moving in the right direction. Smile

GlaikitHasHerFizzBack · 05/04/2013 18:48
Original poster
Trazzletoes · 05/04/2013 19:07

Grin IF he doesn't get worse again before Sunday... We can take him outside for 20 minutes!!!!

I appreciate this doesn't sound like a lot, but it means that he is actually properly through the worst.

My eyes may have leaked. Quite a lot. Blush

OP posts:
NorksAreMessy · 05/04/2013 19:10

trazzles I dont know you in real actual life.
I dont know Joe.

But I am sitting here with tears rolling down my cheeks.
My best love and tightest gingers and brightest splodge from Malvern for you all.

Bloody hell

GlaikitHasHerFizzBack · 05/04/2013 19:11

that is brilliant. Do they have a nice garden for patients? :)

RatherBeOnThePiste · 05/04/2013 19:12

Oh Trazz, I have just goose bumped BIG TIME at this fab news.

Really marvellous and wear your vest, tis ffffrrrizzzzzin!!