High dose chemo and beyond. Onwards and upwards hopefully!

[Trazzletoes]

Another continuation thread for Joseph's ongoing fight against the aggressive cancer, neuroblastoma.

Oh no Trazzles, how frightening for you. I hope the antibiotics knock it on the head as fast as possible. Thinking about you all tonight xxx

Will keep everything crossed it is not the lung infection. In my thoughts x

Trazzle- just wanted to say I am thinking of you. It is just one thing after another. Hope the doctor is right and the antibiotics will sort out the infection. Take care xx

Oh, Trazzle, this bastard illness. You must be utterly strung out. Sending lots of positive thoughts for little Joe and you all and hoping very much this infection is controlled very soon. X

Thinking of you, him, DH and of course dd.

Splodge here continuing.

I was so pleased to hear your earlier update, but now so sorry to hear things have got worse again. Keeping everything crossed that the antibiotics can deal with the lung infection and that it's not the one you fear. Also hoping Joe has a restful night. Thinking of you all. xxx

Thinking of you all and praying for better news soon.

Just to say I'm still thinking of you and that the news is better today x

Oh Trazzle, what a worries.

I very much hope one of Joe's consultants has been to see him now and that they are being able to rule out THE lung infection and that they have found out which antibiotics he needs.

I feel so so sorry for little Joe and I feel so sad for you and your DH that you have to witness Joe going through all this. It is horrific.

I hope that all Trazzles managed some sleep last night. Please try to look after yourself, as it no doubt will be taking its toll on you and your DH as well, emotionally and physically.

Lots of hugs for all the Trazzles

x

Just sending a splodge. Of course you are scared. Hope you get some good news, today. X

Sending love and strength and hoping the antibiotics kick in and sort out the infection xxxx

Trazzles of course you're feeling anxious .... anxiety is apprehension about the unknown and our minds filling unknown with the worst case scenario. It is completely normal without all your questions answered and gaps in information.

I hope that you can get your hands on someone who has the information you need as soon as possible.

Perhaps, if you think it will help, when you or DH are away from Joe and the hospital you can be given a contact number so you can speak to the medical staff in charge. You will, no doubt, both approach new situations differently - ask different questions.

I really, really hope that it isn't that lung infection. Hoping for a better day for all the Trazzles.

Oh no. I really hope it's not the lung infection you fear. I can well understand you're up to your limit now with all this. It's too much for a person to bear :(

Thinking of you and I hope the lung infection is a different one to the one you're thinking. Hope things improve for you today.

Still thinking of you all xxxx

Ok, now the Drs are saying that its unlikely to be a lung infection. Something has caused the temperature but I'm a little bit calmer now.

Cautiously good news

Good news that it is unlikely to be a lung infection and hope that they quickly find what is causing Joe's temperature.

Given what a distress the (junior) doctors last night have caused you (through no fault of their own, they are still learning and maybe not very familiar with Joe and/or neuroblastoma), can they give you contact details of one of his consultants so that in future you can directly speak to them in such a situation?

How is Joe today?

Oh I do hope that is the case. Still thinking of you, and wishing and hoping.

To be honest, we don't really need phone numbers.

Tea either DH or I are always here so we are meant to ask questions on behalf of each other except when I forget to

With last night, I understand from DH that it was all run past one of the Consultants first anyway. But a specialist radiologist took a look this morning and came to a different conclusion so I guess it's just one of those things. Plus I was building it up in my mind. DH was not overly concerned. He's much better at all this than I am.

Phew, am so glad to hear it's not the lung infection you were worrying about. You must be exhausted with worry. I hope you get better news today. And I hope Joe is feeling less rough, poor boy.

I'm glad it's not the lung infection and long may it stay that way......

Yep - I'm on the estuary ;)

What a roller coaster! I hope they find the cause of the infection soon and Joe's fighting body can get back on the making of neutrophils.

Ahhhh. We have that too - DH and I. He makes me laugh when he's in the situation of being in charge of questions because he's always thinks through his checklist of tea questions. He looks very proud when he has the answer to one but inevitably misses the one about how someone feels and why are they doing it. He has looked quite crushed on occasions. I always miss the "what's happening next?" type questions.

Splodging again

Deurking to say that I am still holding you all in the light.

Phew.
So glad it's not what you feared.
Do hope the temp comes down x