High dose chemo and beyond. Onwards and upwards hopefully!

[Trazzletoes]

Another continuation thread for Joseph's ongoing fight against the aggressive cancer, neuroblastoma.

Oh Trazzles - I am so sorry hugs and x

So sorry to hear that Trazzles. Adding my hand to those available for holding. I'm sure I'm not alone in wishing I could do more though.

Oh Trazzles - that is right royally shit. I'm sorry.

Splodging for a lower temperature.

Oh Trazzles, what a horrible roller coaster you are on. It sounds utterly exhausting. Glad that Joe has managed to sleep this afternoon, he must be feeling exhausted too.

I very much hope that the doctors have managed to sort out his sickness and have identified what is causing his temperature to spike.

If the morphine caused the fluid retention does it mean he does not have VOD, but it was the morphine?

I hope that all the Trazzles are going to have a better evening and night.

Sending lots of hugs, positive thoughts, strength.

(((((((trazzles))))))))
You poor darling, what a huge amount you have to deal with :(

Sending you love and the best of all possible news for tomorrow

Oh Trazzle I'm so sorry. Poor Joe. Poor all of you. Big hugs. I don't know what else to say but am lurking, praying and Splodging away.

Trazzles

Sending a hug Trazzle
Don't know what else to say or do, but sending a hug and best wishes and positive vibes x

Trazzle it is so, so hard. Up one minute, down the next. I hope the Drs are able to pinpoint what is making his temp spike. It is so exhausting. My thoughts are with you xxxx

Trazz, so sorry. Yes, far too much. All the f words.

Loads of thoughts and prayers. And hugs and virtual drink and chocolate. And a top up of your amazing courage.

Splodging from s London.

Very :( to hear that his temp is up with no apparent reason, Trazzles. Everything crossed here that it starts to come down very soon and his neutrophil level isn't affected.

Lord Trazzles, it's too much. Thinking of you and that gorgeous boy, wishing for some rays of sunshine for you soon.

That's shit - really sorry to hear that. Hope tomorrow is a better day. Gingers crossed.

Oh crappy crap, read your good update and was all yay, then read your last one and now not yay. Can't imagine how you guys are feeling. Hope it's all a bit better by morning xx

DH just texted to say a chest x ray has revealed an infection in his right lung. The Dr on this evening thinks that the antibiotics he is on should deal with this.

However, my blood is running cold as we were warned about a specific lung infection before all this started by his consultant. I am terrified that this is the "dangerous" lung infection. I know there's every chance it isn't but that isn't taking the terror away. I can't think rationally at the moment though I know enough to know I'm not being rational.

I guess we will need to wait til morning for someone who knows Joe better, or knows neuroblastoma better, or one of his consultants.

I don't know which Dr saw him this evening but it is likely to have been one of the registrars who started a couple of weeks ago which is compounding my anxiety a little.

Sorry, I've got myself really worked up about this. Lung infection were the 2 words I desperately did not want to hear.

Splodging for you tonight Trazzle family. xx

Sorry dikkert I didn't explain myself very well. Joe definitely has VOD - it's been confirmed on a scan. The VOD causes fluid retention. Morphine makes your bladder lazy so the morphine was not causing fluid retention but was compounding it. Although he hasn't been weeing any more without the morphine so they are considering a catheter tonight unless he goes soon.

Sounds like a tough day. Just hang in there Trazzles. Praying for good news here for you all.

Oh Trazzle - really hope it's not that lung infection. The whole thing is such a bastard. Gingers crossed for the right result.

x-posted with you Trazzle. Praying the news is better in the morning.

Is it psuedomonas ? The antibiotics will really be helping. Although a catherter is horrid it will really make it easier. Praying for Joe and Team Trazzle xxx

Oh trazzle. What a shit horrid scary place for you to be right now.

I think about your little dude often, sending positive vibes, a hand to hold and a big splodge of light from the Essex riviera.

Good that they've diagnosed a lung infection so they know where his temperature is coming from, I'm keeping my gingers crossed that it's not that chest infection and that someone can offer some reassurance very early tomorrow morning.

Xxx

I do hope you're talking about the estuary (it's kind of my manor)