My dd has silent reflux, oral aversions and feeding issues. She generally has around 500-700ml of formula a day plus small feeds of olive oil fortified solids.
She has dropped off the curve and now her height and head circumference have stalled.
The doctors are mystified.
At that level of milk she should be at least gaining a little but her curve has flatlined.
Now have been admitted to hospital (thousands of miles from family and friends as am an expat) and metabolic / genetic diseases are being explored. She is seeing neurologists, geneticists, occupational therapist and a gastroenterologist.
They won't do a gastrostomy until they rule out metabolic disorders.
I'm tired and terrified.
They can't do CF tests here as almost unknown in Asia.
And to cap it all off my DH has to fly back to the country where he works so just me and little dd struggling to make sense of it all.
Dr House much needed on this one.