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Children's health

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Original poster

Joe vs. The Cancer

999 replies

TrazzleMISTLEtoes · 08/12/2012 23:26

My 3 year old DS, Joseph was diagnosed with the cancer Neuroblastoma in October.

Survival rates are approximately 1 in 3.

He's coming to the end of chemo and so far, chemo is kicking cancer's butt. 3 cheers.

OP posts:

Thumbwitch · 21/02/2013 07:22

hi Trazzle - I've just been watching something on Aussie news about neuroblastoma research here - this is the link to what they were talking about
I'm sure that Joe's consultants are pretty on the ball but this is very recent news, apparently, so might be worth a look and possibly a mention? they're still working on it, it's not a treatment yet but all information is helpful, IMO.

mynameisnotmichaelcaine · 21/02/2013 07:28

Hope you get some smiles today. Lots of love.

crashdoll · 21/02/2013 07:55

I visit this thread daily and often start writing but then I stop because words feel inadequate but I am thinking of you all - especially the mighty Joe - and sending BIG love.

Trazzletoes · 21/02/2013 08:45

Honestly none of you need to worry about inadequate words or saying the wrong thing. You haven't. It's really nice to know you are there, willing him on to get through this.

I'm going in at lunchtime today, but not expecting much improvement on yesterday, really.

minmooch · 21/02/2013 08:52

Oh Trazzle bless him. I hope he has a more comfortable day today and thet are able to soothe the pain in Joe's legs xxxx

I blew up photos of all the family and put them up around the room, whichever one we were in, so that when my DS was able to open his eyes he could see all the people that he loves and love him. The nurses were able to talk to him about all these people. After being so poorly for a long time it helped to bring him gently back into the real world, rather than just being in a semi sleep state.

My thoughts are with you all xxxxx

Labootin · 21/02/2013 08:59

I always check your thread Trazzle (though you don't know me from Adam as I never know what to say)

Sending my splodge and crossed gingers and best wished
from Dubai x

TeaMakesItAllPossible · 21/02/2013 09:06

The room sounds wonderful Trazzle - it's lovely to hear that they care about the whole of Joe IYSWIM - his emotional wellbeing being tended for as well as fighting the invader in his body.

Glad to hear the pain relief is doing its job but really wish that it wasn't needed.

Have a lovely morning with your DD and a cup of tea and I hope that you are pleasantly surprised when you get in.

Much love and thoughts for you and yours.

Cookingupastorm · 21/02/2013 09:09

With you all the way Trazzle xxx (Blinkin' freezing here today and haven't got the shopping yet, so sent my husband (demanding physical job) to work with jam sandwiches!!)

dikkertjedap · 21/02/2013 09:12

Thinking of you all and hoping that today will be a better day for Joe.

Trazzletoes · 21/02/2013 16:18

Today sucks.

Joseph is more poorly, for various, not-terribly-serious reasons. He just sleeps, wakes up, screams, tries to be sick and goes back to sleep.

For a big lad, he looks so completely tiny and vulnerable.

I keep crying. And then I feel pathetic for crying when the treatment is working and his life isn't in danger.

And my GP thinks I have gallstones so I'm feeling really bloody sorry for myself too.

But most of all I just want to see my baby boy's cheeky smile again.

MyHeadWasInTheSandNowNot · 21/02/2013 16:24

I hope you get to see that cheeky smile again soon!

Gallstones - just what you need!! Can the Dr help you in anyway? When is DH relieving you at the hospital?

ToffeeWhirl · 21/02/2013 16:25

I'm so sorry for you both. And your DH too, of course. I just hope this period of feeling so ill passes as quickly as possible for Joe. It must be dreadful for you to have to see him suffer like this.

It's not fair for you to have gallstones now! I really hope it's not so. Really, that's all you need right now.

At least today is another day ticked off the list. I hope Joe starts to feel better soon.

Light burning for Joe here in Sussex.

Fivemoreminutesmummy · 21/02/2013 16:31

Hopefully this will be the worst of it, another day done, another step closer to getting better.
I too often think of Joe and check up on his progress regularly. Your story and courage and Joe's lovely nature seem to have touched a lot of people.

WhoKnowsWhereTheTimeGoes · 21/02/2013 16:36

Hugs from me too, thinking of you all. x

tangledupinpoo · 21/02/2013 17:09

Oh Trazzle, I'm so sorry. Can the docs tell you when Joe might begin to feel a bit better, if they know the reasons he's not so good today?

Please don't feel you're being pathetic. Your courage is amazing. Anyone would need to cry.

This might sound odd but do you have anything to distract you in hospital? When my DF was very ill, various friends would try and get me to talk about my feelings. What I truly wanted to do was watch 10 minutes of 60-minute-makeover. Somehow, alongside all the intensity, I needed to know that somewhere, people were decorating their houses. Do you have anything you can watch telly/listen to music on, if that's what you feel like?

Sorry if that's a totally stupid suggestion.

Everything crossed that you get a cheeky smile from your brave boy very soon.

dikkertjedap · 21/02/2013 17:12

Oh Trazzle, so sorry to hear that Joe is so poorly and so sorry that you have to deal with gallstones on top of everything else.

Thinking of you all a lot and as Toffeewhirl said, it is another day gone.

JOE CAN AND WILL DO IT!

Hoping for a better day tomorrow.

onedev · 21/02/2013 17:20

Oh Trazzle, that's shit. Here's hoping things start to get better soon. Joe is a fab boy & you'll see his smile again soon.

SPBInDisguise · 21/02/2013 17:21

never mind feeling sorry for yourself, we're all feeling sorry for you. Don't downplay it, you're going through a shitty time. The one good thing - the main thing - is that the treatment is working. It doesn't mean that it's all a breeze - I can tell that just from the tiny snippets of your life you can put on here.

PseudoBadger · 21/02/2013 19:32

Trazzle I'm thinking of you and Joe all the time - wishing for a cheeky smile xx

tholeon · 21/02/2013 20:01

Bastard cancer. You are incredibly un pathetic. your dear little boy has to deal with feeling ill, but you and dh, with the others that love him, are dealing with the fear his illness generates, which he is thankfully too little to understand. Very, very un pathetic. He will smile again, I hope it is soon for you. sorry about the gallstones, horrible that we are more vulnerable to these things when under stress.

bobkate · 21/02/2013 20:03

hugs from Essex xx Hoping for a better day tomorrow x

barefootcook · 21/02/2013 20:06

Hi Trazzle

I hope you are having a better evening. It will only get better. The photo idea sounds great. Perhaps you could get a friend to enlarge and laminate some big fun family photos and have it like a changing exhibition so Joe has different things to look at every few days. Thinking of you all again from this neck of the woods.

MelodyBaker · 21/02/2013 22:02

I too type things and delete as I really cannot begin to imagine how you must be feeling.
I want to wish joe and you luck for this journey and he will get through It. He's a fighter x

Trazzletoes · 21/02/2013 22:14

Thanks all. TMI warning...

We've had some spectacular green vomit this evening but at least his diarrhoea seems maybe to have calmed down a little. I so hope that's not wishful thinking! He still feels very nauseous but the morphine and anti-sickness drugs have made him very dopey so hoping we manage some sleep. I'm off!

Ps. Thanks for the Essex hugs - I know they're the best goooooooooooooo Essex!

SarahJinx · 21/02/2013 22:20

Wishing a decent night for you Trazzle, and always wishing for the beautiful Joe. Checking in on you daily and hoping for some smiles x

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