Number9 fingers crossed she has low risk neuroblastoma which is more common in under 1s and has survival rates knocking on 100% because its pretty much benign. One of the possibilities is that the chemo may turn Joe's aggressive, high-risk neuroblastoma in to low risk tumours instead.
So he had his ultrasound yesterday and then we toddled off for chemo. The scan had been delayed for nigh on 2 hours and by the time we got to clinic and Joseph had coughed all over the receptionist, the Dr decided that more swabs needed to be taken and a chest x-ray before chemo could start.
This is just a teeny bit frustrating because this happens EVERY TIME. And with the same Dr. He has had this cough since September .
By the time the tests were done they decided to postpone chemo til today because its done as an out-patient this time. Again, I had no idea. I know they have an awful lot on but do think they may benefit from not assuming we know everything.
Still, it means we should be home tonight, for DH's birthday (yay!). Not sure if we'll have more chemo tomorrow... I really don't know anything!
Also, now his whole treatment has been delayed by a day we're very much hoping that he doesn't need an extra course of chemo at the end as that would start on Christmas Day... Cross your fingers (again!) peeps!
Am meant to be having a meeting with work this morning to sort out the logistics of my return. DM said last night she's worried she's not feeling well so may not be able to come and sit with Joe while I go. This keeps happening so I'm fairly certain it's psychosomatic but will see if I can convince her!