Natasha I didn't read it on purpose! It was the details of the meeting where they gave us the diagnosis. I assumed that it was details of the actual meeting, not thinking that they have so many of these meetings that they have a standard set of notes. We hadn't asked about survival rates but of course most people do so the info is in there. The notes are care-related, they detail his anticipated treatment.
Today has been ok. He's been permanently hooked up to a feed but has also been ravenously hungry which I'm taking as a good sign! He has barely stopped eating today. Unfortunately we have the only bed on the (full) ward that has a broken tv so it is a trying few days ahead! A friend lent us an old DVD player which has been amazing but I think it's had enough today after being on for several hours straight!
We were initially told we'd be going home tonight but then it was tomorrow night. Now he's likely to go straight in to his next chemo on Thursday so we'll be in til the weekend, most likely.
He was awake so late last night that thank goodness he has fallen straight to sleep tonight. No mean feat with People across the ward watching the Simpsons on full volume.
He's veered between being a gorgeously cute angel today and a complete pita. This afternoon he's had me tearing my hair out and I've shouted at him a few times. I know, I know, my parenting style leaves a lot to be desired. I feel bad enough about it without anyone else pointing it out, believe me.
DH's aunt and cousin popped over today which was lovely. DH's aunt had a party planned for saturday to mark a significant birthday and wedding anniversary. I mentioned that DH still hoped to go but they've cancelled the party because they didn't want to celebrate while DS is sick. I understand that but feel terribly guilty.