Mini-trazzle and his candles vs. neuroblastoma

[Trazzletoes]

Hi, continuity thread for my little DS (3) who was diagnosed with neuroblastoma last week. Much gratitude for all the support the Trazzles have received. You nasty nest of vipers, you

No Dikkert. 65% die. 35% survive.

OMG, I am so so sorry.

Your son has to be in the 35%, the doctors will be doing everything they can, he is doing everything he can, you and your family are doing everything you can.

Hugs.
x

No words on a screen or indeed in person will take even an ounce of your pain away. But if only prayers and thoughts were enough your little boy would be better tomorrow.
We will be here throughout the journey and as previously said if their is anything that could send to bring even the smallest smile to miniT then message me.

Wish was something that we could do.
Hope your getting plenty of RL support xx

Thinking of you trazzle and all your family. Statistics are awful to think about. All you can do is keep being the most loving mother in the world to your little boy. Virtual hug.

Your thoughts on cancer are echoed by so many of us. You just said it more eloquently!

We're all here for you and will do anything within our power to help. xx

I am so very sorry. There are no words

I wish there was something we could do to help. I can offer a hand to hold and a splodge of light from South Lanarkshire.

If there is anything else, please let me know. Would honestly love to send a wee something in the post for him to open.

Hugs xx

I'm so sorry, Trazzle. So, so sorry. Try to focus on how much MiniT has in his favour, if you can - a dedicated medical team and a loving family. He has an excellent chance of being one of the 35%.

Oh Trazzle I am so so sorry. We are all sending you so much love and strength xxx

Ah Trazzle, I have tears in my eyes just reading your posts there - your pain is utterly palpable and completely understandable. (((hugs))) and I have everything crossed that he will be in the 35%.
I just wish there was more that we could do for you and miniTrazzle.

Oh Trazzle I'm so sorry. Echoing what has been said already that LittleTrazzle HAS to be in that 35%. As terrifying a statistic as that is, remember it is just that - a statistic written on a piece of paper, nothing more. Easier said than done I know. Thinking of you all. Splodging away still in Bucks.

Hi there Trazzle-I'm sorry you are so down. Someone has to be that 35%group and our Mini Trazzle will be in there boots and all. I have a good feeling about it! We are praying for you all. I know that you probably don't want his name on this board but if there is anyway you can get his first name to me I can get our whole congregation and 500 boys on the case! If not, will just go with Mini Trazzle- no problem at all.

Yes , it's a f$%& hideous bastard. But Mini-Trazzle starts his war at 100%. He is unique, and he may not have many of all the characteristics used for the stat. Age, background, etc.... These stats are general. Nobody can tell you what his chances are, and they may well be wrong. My very best friend's DD was diagnosed with a rare form of Leukemia and given less than 5% of chances of surviving. More than six years ago. And you should look at her, now. Running with my kids on the beach chasing them. They just don't know.
And Mini-Trazzle is not alone. He has a great family there, best medical treatment available, and lots of people ready to fight for him and with him. So throw the leaflet away, it's not describing your son.
It's a long and hard road. You help your son during the day and we MNetters will help you during the night.
Hair falling is quite distressing but it proves the meds are working.
Big hug

I'm so sorry to hear that, mini trazzle is in all our thoughts and prayers. Could you have a chat with the consultant about your DS's specifics as survival is hugely influenced by cell type within the tumour and response to treatment? I know that might be scary but it may also give you more information to deal and work with.
Will be sending you positive thoughts and a big hug.

Trazzle, I'm so sorry.

All love and prayers and hugs and light Splodge to you and little one.

trazzle
I wish I could take away your pain, those stats are horrid and should be chucked in the bin.
Your DS has everything he needs to fight this, most importantly he has the best mummy in the world fighting for him.
You are amazing and cancer is a fucking bastard, it's evil, it's rotten. You will win this fight Trazzle.

We are all here for you and mini T, through the good times and the bad.

Sending you so much love and hugs for your whole family, I am constantly thinking of you all xxxx

Trazzle.
My youngest son is only a little older than your ds.
I look at him and think of your precious boy.
I look at him and am angry that anyone has to endure what he and you are going through.
I look at him and try to imagine what you must be feeling and cannot.
Life is unbearably cruel at times.
I wish I had any words of comfort for you.
All I can say is grasp the positives...his kidney function was outstanding...that's great.
Your are all in my thoughts and prayers x

Thinking of you Trazzle. My DS was very premature and given a 10-15% chance of survival. He's just started pre school. Someone has to be in the 35%.

Have asked my mum to put a word in for your little boy.

Like Celtic Promise said - someone has to be in the 35%. Will hope against hope that it's your DS. Take care.

Trazzle, hold onto the positives. You had an outstanding result on his kidney tests, his potassium levels are bound to be low with the treatment, but he is strong and the cancer is being blasted at the moment. With every day that he goes in, it's another day that the cancer cells are zapped.

The hair will grow back but the hope is that the cancer will be gone forever. So keep holding onto those positives, to the fact that he is responding to treatment. Miracles happen every single day and you have to look at those statistics in more detail - how many of those include very young babies? How many include children who had underlying illnesses to cope with too? Your boy has a fighting chance. People have survived worse odds.

Take every day as it comes and focus only on the positives. Every day the tumour is being attacked. Every day it is hopefully getting smaller. Every day is another day closer to the end of chemo and another day closer to recovery.

We are all sending you so much love x

I read "outstanding" to mean "still outstanding / not back yet"

Trazzle - Statistics are like CRB checks - only valid on the day they are produced! Those figures could have been from 1, 2, 5, 10 years ago. With every case the doctors treat their knowledge of this awful disease gets a tiny bit better so helping to shift the balance of statistics more favourably for everyone.

shifty you're right . Not at work for 10 months and I'm still talking like a solicitor

Ignore those statistics. Just remember that everyone is 100% trying to make him better. Will be thinking of you all. xxx

Trazzle - I missed your post last night, I'm sorry not to have been there when you were feeling so incredibly shit :( I would like to reiterate what Gordonpym said (and I quote) Yes, it's a f$%& hideous bastard. But Mini-Trazzle starts his war at 100%. He is unique, and he may not have many of all the characteristics used for the stat. Age, background, etc.... These stats are general. Nobody can tell you what his chances are, and they may well be wrong. My very best friend's DD was diagnosed with a rare form of Leukemia and given less than 5% of chances of surviving. More than six years ago. And you should look at her, now. Running with my kids on the beach chasing them. They just don't know. And Mini-Trazzle is not alone. He has a great family there, best medical treatment available, and lots of people ready to fight for him and with him. So throw the leaflet away, it's not describing your son. It's a long and hard road. You help your son during the day and we MNetters will help you during the night. Hair falling is quite distressing but it proves the meds are working.

35% is NOT MiniTrazzle's possible survival rate. Those rates actually mean jack shit to an individual - MiniT's could be much much higher than that and I actually think you were doing the right thing initially and not reading stuff like that. It just scares the shit out of you and doesn't actually tell you anything about your sons unique chances of pulling through this. At this very early stage you have to believe he has every chance in the world of surviving this.

We are all here for you, through all of this - until he too is running along a beach x

Trazzle, still here, cancer is fucking awful