ds 23 months-swollen feet and ankles since birth-have googled and seen lymphoedema, any experience?

[hazeyjane]

ds has always had puffy looking ankles and feet, he looked very bloated when he was born.

He has low muscle tone and global developmental delay. He is under a consultant, physio etc.

The other day at sn nursery a visiting physio showed a lot of concern over the swollen/fat look of his feet.I asked what she thought and she said it would be worth talking to his consultant. Unfortunately we don't hve an appointment until end of July, and although I have left him a message, he hasn't got back to us.

So I googled (I know, usually a bad idea!) and the closest thing I can see would be lymphedoema (sp?). Does anyone have any experience of this condition? Especially in children?

anyone?

Lymph oedema is not very common in children and there are many causes of swollen ankles and feet, often biochemical and sometimes linked to kidney function. Not much help sorry.

thankyou sneezecakesmama, that is the trouble with dr google, it usually gives you the worst case scenario!

I have always just thought ds had poor circulation (feet are sometimes grey) and his feet look like newborn feet - clenched, small, very fat (he has smallest size but widest fitting on his piedro boots!) so thought as he bore more weight on them they would spread out and look more toned.

It was just this other physios reaction, she looked so concerned, which of course got me worried.

Hopefully his consultant will get back to me soon.

What sort of consultant is it? Just thinking that if it's a different problem from their specialty, they might not have considered it IYSWIM.

Might be worth going to your GP and describing the swollen ankles and grey feet (have his fingers ever gone grey too?) because you might need to see someone different.

Thankyou, Boulevard. He is the lead paediatric clinician, specialising in epiliepsy.

I am seeing our gp today and ask what she thinks.