Can we start a new asthma support thread now dreaded winter season is looming?

[Knackeredmother]

Hi,
I can't seem to find the old support thread. I lurked on it during many long, lonely and frightening nights and admissions with ds over the past year and a half.
My ds is 21 months now, was hospitalized at 8 weeks severe bronchiolitis (really thought he would die) then every 3-4 weeks since whenever he gets a cold. No symptoms in between colds but a wet, crackly chest with some wheeze with every cold. Plus of course the dreaded tracheal tug and sternal recession that heralds an admission.
It is all so bloody draining and heartbreaking!
We are just starting with a new bout today after a whole 8 weeks of being well. I am debating whether to call in sick for my nightshift tonight or leave poor hubby with an inevitable hospital admission AND our 4 year old!
Anyway, would be good to hear from others going through similar so we can all support each other ( or direct me to the original support thread!)

Fingers crossed he can be persuaded to drink!

How has the drinking gone? x

It was going okay until around 2 then he vomited everything back up He has now got an ng tube in as they don't want him to rely on the drip x x don't know how long it will stay in for as he really doesn't like it x

Oh no, hope he improves soon x

Just waiting for the doctors to come and discharge us x he is now on oral antibiotics and is tolerating fluids x x he looks so small bless him he's lost a kilogram in a week x x we have got a follow up for scans in 6 weeks x x

Glad he is on the mend x

ali yay!

Am getting rather irritated with DD1's teacher. DD1 has been really tired these last few days which can be an indication she is about to have an asthma attack. Unfortunately the same parent is always speaking to the teacher about her child. She gets there early and stands at the door every morning and proceeds to speak to the teacher for 15 minutes until registration. Every morning.

Think I'll just speak to the SENCO...

Hope you got to speak to someone Ilove

DS is in a similar over tired will he/won't he have another attack stage. Its like some sort of scales and waiting to see which way they tip.

Ali how is DS getting on?

He's so so tired still and clingy but I'm just glad to be home x x I've got to keep track of his fluids and wet nappies and send another sample in Wednesday x x

Ds1 went back to school after half term and is exhausted with a sore throat and he sounds croupy x I'm sure my kids take it in turns to be unwell x

Hi
Alli sorry ds has been so ill. hope he feel better soon.
ilove Hope you got to talk to someone . I Know how you feel about not being able to talk to the teachers. We have about five mins to talk to the teacher before school and it is a night mare.
Ds is still plodding along with his asthma we went away and the difference in him was amazing. He now has a tummy bug though its always something!!

cedmonds how did it go at GOSH? Did they change his medication?

Spoke with the SENCO who suggested a communication book. It seems to have worked as I wrote in it yesterday that DD1 was quite tired and to please keep an eye on her exhaustion levels, and around lunch time she was given Ventolin because she was looking wiped out and then perked up...

Hi
ilove
Glad the book seems to be working. GOSH increased his seritide to two puffs twice a day and changed his antihistamine. He is also having ventolin 2 puffs twice a day.There is another anhistamine they want to put him on but he has to be 6. It has horrid side effects though and can make the heart keep stopping He has got to go back in a few months.
alli How are you DS's doing?

Ds2 is nearly back to normal he saw my gp yesterday who wants to see him again next week to make sure he continues to improve x x
Ds1 picked up overnight much to my relief x x

is asthma linked to getting tired? if my son misses his naps (he is 2.9) he is likely to start getting chesty and using his auxilliary muscles etc more?

With DS it tends to be more if he is ill or coming down with something he sleeps more. The couple of months we had when he was stable he stopped napping at all, now he needs a couple of hours a day.

Well what a waste of time, gp insisted we saw the asthma nurse there to get future repeat scripts (god knows why!) waited half an hour to be told "yes he's not as stable as we like but we won't change anything that's up to the consultant" -- yes that's exactly what I said when I was told we had to see you!

sirzy we see the asthma nurse at Children's Hospital. We did see the asthma nurse at the GP's, but she wasn't comfortable prescribing the amount of Seretide for DD1 as it goes beyond the Paediatric guidelines, whereas at Children's Hospital, the asthma nurse is more used to prescribing for 'difficult' cases.

Maybe the reason the GP wanted the asthma nurse to prescribe is so that his asthma would be monitored? I had a discussion with our GP about how it should work, and he said that he would expect Children's Hospital to try and get her asthma under control, and that he would see her for acute episodes, more than likely he would send her to Children's A & E anyway...

Grrrrrrrr ds2 has had a bad night coughing and wheezing

How is he today alli?

I've been managing him at home but tonight his temp has gone up his breating rate is 56 and he's just been sick :( just given 10 puffs and calpol so we will see in the next hour :(

oh no alli hope you stay at home and he settles poor thing has been through so much recently.

Been to the gp and have got some pred got to go back tonight to see how he's managing

How is he doing Ali?

Ended up blue lighted from the gp went to different hospital it was an awful experience they stabilised ds pretty quick and we spent one night in x I've spoke to his consultant and told him I'm not happy so he is reviewing him in clinic next week x

Hope he is doing better now Ali

Ds is wheezy again today so I'm hoping it's not the start of something bigger