Can we start a new asthma support thread now dreaded winter season is looming?

[Knackeredmother]

Hi,
I can't seem to find the old support thread. I lurked on it during many long, lonely and frightening nights and admissions with ds over the past year and a half.
My ds is 21 months now, was hospitalized at 8 weeks severe bronchiolitis (really thought he would die) then every 3-4 weeks since whenever he gets a cold. No symptoms in between colds but a wet, crackly chest with some wheeze with every cold. Plus of course the dreaded tracheal tug and sternal recession that heralds an admission.
It is all so bloody draining and heartbreaking!
We are just starting with a new bout today after a whole 8 weeks of being well. I am debating whether to call in sick for my nightshift tonight or leave poor hubby with an inevitable hospital admission AND our 4 year old!
Anyway, would be good to hear from others going through similar so we can all support each other ( or direct me to the original support thread!)

Daft isn't it Ali, I did remind them it was only ventolin not methadone I wanted!

Ds has been admitted this afternoon, can't get his temp below 39 with max dose Paracetamol. Just waiting to have bloods done and looking likely he will end up with ivs.

so sorry to read that x x let me know how u get on x x

Thanks Ali. He is fast asleep for now so I'm pigging out on Haribo watching crap on tv!

Mmmmm I've just pigged out on a dairy milk if it's like my children's ward the tv and lights go out at 9 so u have no choice but to go to sleep lol here's hoping for a well night x x

We have tv 24/7 but have to use headphones from 10pm. Just waiting for them to do his bloods and then will be attempting to sleep.

How's ds this morning Sirzy? X

Chest wise he is doing well. But he has a sore throat to so getting him drink in a pain. Using difflam and a syringe at the moment!

Are u still on the ward? X x we are going away this weekend so hopefully we will stay away from the hospital x x taking the nebuliser and emergency pred so I'm well prepared x x

He is home now :) got to go back in 2 weeks for repeat bloods.

Have fun Ali, we are meant to be going away in the morning for the weekend. Will have to wait and see how DS is but the doctors seemed happy for us to take him and we have details for the local hospital just in case!

Glad u are home x x Hope u have a fab weekend too x x Hopefully we will get some sun x

Sirzy you know you can register DS at the GP surgery where you go on holiday? Of course you can also go to the hospital and use the GP surgery on an emergency basis, but our GP suggested we do this when we went on holiday to Cornwall. It was really useful when I wasn't sure whether to take DD1 to hospital as I just wanted someone to listen to her chest.

We've made it away ds2 is spending alot of time in his pushchair if he walks for more than 5 mins he is coughing and wheezing but he is enjoying just being out of the house x x

Thanks Ilove - we ended up at the OOH as DS had an allergic reaction to the antibiotics.

DS was the same Ali, but still managed to have a lovely time! x

Ds2 is back in hospital with suspected meningitis

Ali Oh no! Hope you are OK

Oh no Ali. Let us know how he gets on x

Thankfully not meningitis but a bacterial infection that they can't identify he hasn't woke up since Sunday and won't eat or drink so is on a drip and on broad spectrum antibiotics x x

Poor thing :(

How is his chest coping with it all?

And how are you coping? xx

Sirzy surprisingly well x so at least that's one good thing x sats are around 95 x x he's had a restless night last night x x

Hope he is doing better today Ali xx

DS went back to nursery again today and managed pretty well although was knackered tonight and has been asleep since 6.

How is everyone else getting on at the moment?

ali great it's not meningitis. Have they been able to give a diagnosis?

sirzy DD1 has been so exhausted this half term which can be a symptom of asthma. Oh I don't know, she's still 5 and in Year 1, and I noticed at the Class Assembly last week how much thinner she seems compared to others. She's on the 75th percentile for height but 25th for weight despite eating like a horse, so I do worry about her stamina. She sees the respiratory consultant in the next few weeks and hopefully will get her medication reviewed. I haven't been able to reduce her Seretide, but he tends to think of 'under control' as only a few visits to A & E .

DS tends to be full of energy in bursts of about 5 minutes then have to sit himself down, he is only 2.5 but has already learnt when he needs to stop :(

The hospital are starting to monitor his weight, especially as he has lost quite a bit while ill and has always been a titch anyway!

Hope you get your DDs meds sorted to something that works for her!

Still unwell he is refusing fluids and
hasn't eaten since Sunday he has got a serious water infection so changed his antibiotics to one I can't spell x all they need is for him to drink and we will be aloud home x x

At least they know what it is now.

DS was the same with the drinking last week, the nurses commented how it was like a drinks shop with all the different bottles I had around the place of anything I thought may tempt him to drink. Only got to bring him home on the promise we would syringe fluid into him if he wouldn't drink, as soon as we got home the little sod he started asking for juice. I am sure he just wanted to stay and play! x

Well ds pulled the drip at 5 this morning so it's up to him now to drink x he's got to take 600ml throughout the day x he is showing some improvement as he has been fighting the syringe and meds x x