Can we start a new asthma support thread now dreaded winter season is looming?

[Knackeredmother]

Hi,
I can't seem to find the old support thread. I lurked on it during many long, lonely and frightening nights and admissions with ds over the past year and a half.
My ds is 21 months now, was hospitalized at 8 weeks severe bronchiolitis (really thought he would die) then every 3-4 weeks since whenever he gets a cold. No symptoms in between colds but a wet, crackly chest with some wheeze with every cold. Plus of course the dreaded tracheal tug and sternal recession that heralds an admission.
It is all so bloody draining and heartbreaking!
We are just starting with a new bout today after a whole 8 weeks of being well. I am debating whether to call in sick for my nightshift tonight or leave poor hubby with an inevitable hospital admission AND our 4 year old!
Anyway, would be good to hear from others going through similar so we can all support each other ( or direct me to the original support thread!)

Hope ds is feeling better sirzy x x ds2 still not well they think something else is going on he keeps being sick lethargic and is loosing weight and intermittent tummy pain today he has had chest xray sent a urine sample off started on yet more antibiotics as his tummy and neck glands are swollen and is being reviewed tomorrow x x

Well we are back in hospital

ali so sorry. Any update?

DD1 had her appointment with respiratory consultant this morning. Luck more than anything else, as had appointment with asthma nurse tomorrow at another hospital, but literally ran into her and she very kindly offered to sit in on consultant appointment and then do DD1's appointment immediately afterwards. . There was discussion about changing DD1's medication to Thor (???) but he feels that due to her age (5) any side effects wouldn't be beneficial. So, she's still on Seretide 125 but has increased Singulair at 5mg.

The asthma nurse at Children's Hospital will be meeting with the community nurse to set up an appointment to come to the school and meet with DD1's new teacher and SENCO.

She also revised the care plan so it isn't a template, but quite personalized . Looks all official coming from Children's Hospital.

hi
ilove the new meds was that a liquid? If so i wonder if its what they were talking about for ds. Hope the singular increase helps it did with ds. It amazing how a care plan from the hospital makes the difference at school. They always never bothered with it untill it came from GOSH.
alli sorry you are back in hospital Hope he gets better soon.
Ds is doing really well at the moment asthma wise but we have still got gastro issues with him just waiting a call from the consultant at GOSH. Bumped in to his old asthma nurse today and she couldn't believe the amount of weight etc his has lost

They have ruled out more serious things like leukaemia and a tumour but think something is going on in his tummy we are home for now and waiting on celiac results and urine results we have got to go back next week or straight back to the ward if he gets sick again x

When I got home poor ds1 was a state all swollen and puffy and a really bad chest due to hayfever poor thing x x

oh no alli i am in the same boat with ds he is having his celiac screaning done on monday after speaking GOSH.
He has had constant diahrea(sp) and tummy cramps for 2 and a bit weeks. He is now on imodum which is only helping a bit. Poor things if its not thee chest it something else.

Popping in to say hello

I was on this thread a while ago , when dd was on antibiotics and steroid tablets every 3 weeks for almost three years non stop . She has really improved since turning 6yrs old . she still gets very chesty but has been able to ease off the antib's a lot .

Just wanted to say hello and wish you all well x

Glad she is doing well Elmo!

Ds is still up and down but more ups than downs as long as I don't try to reduce his ventolin!

Thanks Sirzy :)

For years i was told dd would improve when she hit age 6-7yrs as her immune system would mature , i must admit at the time it felt like we were being fobbed off , but she has definitely improved . she still gets every cold going straight to her chest but she seems to be able to cope better with them now any is only on antibiotics every 3 months or so these days.

I am really hoping that you will find the same when your ds gets a little bit older and stronger x

Hope everyone is doing well.

Just been to see DS consultant who has put him on serevent (I think) aswell as his other drugs so hopefully the new combination will help. Got to keep a diary for the next 3 months to so we can hopefully start to find triggers

I'm new to the thread, my DS is 14 months and is on ventolin, becotide and the paed wants to try him on montelukast (sp?!). He has an attack about every 1-2 months so we've had quite a few trips to A+E with one overnight stay.

He has allergy to peanuts which he has a jext pen for. But I suspect he has a delayed milk allergy too, quite a few of his attacks have coincided with him having some dairy, he's still BF so obviously cows milk products are not a massive part of his diet. Well I've taken him off all dairy and I think it has reduced his symptoms alot.

Just wondering if anybody else has experience of allergy related asthma? Sometimes I wonder if I'm imagining things sometimes, trying to identify 'triggers' but I'm sure there's a dairy connection in my DS's case.

Hi, Ds asthma is triggered by allergies we think just not sure what they are yet. Apparently montelukast can help with the allergies so it sounds like it is worth considering for you DS

How is everyone getting on?

Hi
How is everyone getting on. Ds has been fine untill a few weeks ago and had a attack. He has still got a nght time cough and his peak flow is down. I hope its not the start of a long winter.

On no Cedmonds, hope he is better soon.

DS is doing ok at the moment other than getting increasingly frustrated at himself for not being able to walk very far :(

I was labelling up his ventolin for his new nursery this morning and he said "me fine mummy, no need that inahler" which I thought was cute but sad at the same time!

Hope he is better now. Its always amazing how quickly they bounce back isn't it.

I think that sounds like a sensible plan, although montelukast is good for allergic asthma so it may help there? I would wait and see what is suggested at the clinic

I have been told not to waste time taking DS to GP/OOH as he always ends up being sent to A and E anyway.

I hope the pred things was a one off, it is a wonder drug for DS

Hello everybody. I'd really appreciate your views. I have a 4yo DS who has had a series of chest infections/ear infections and a cough which is worse in the nighttime. He's been coughing and snotty during the day as well, since about June. We went to the NP at the surgery in July and they said it could be asthma, but was probably hay fever. So he's been on Zirtek since then at the lowest poss dose when it gets bad and it helps. Thinking back, he coughs on exertion when it is cold, which seems fairly normal to me. I have a sinking feeling that it is asthma. What do you think?

Hello all, thank you for the link to this thread hells!
Just marking my place for the coming months!
Hope everybody's little ones are doing well x

Hellbell I think it would be worth discussing with the GP/asthma nurse even if they just start him on a low dose preventer to see if it makes a difference. Asthma and hayfever are closely linked so it could be either or both!

Hi lollipoppi welcome to the thread, hopefully this winter none of us need it more than to just pop in and say all is fine but I'm not hopeful DS will manage that!

He is struggling a bit at the moment, nothing major but needing a lot of ventolin for breathlessness

Thanks sirzy. Am fresh from surgery and the NP seemed unconcerned by it all, which was a comfort, and started him on peak flow meter for 2 weeks. She didn't really explain why but
explained what I was recording. No medication, tho. I am happy with this. Back in two weeks!
As he has just started school, I want him to be on top of the inevitable chesty coughs and infections.
How are things with you?
I really hope that we all have positive stories to share through the Winter.Good luck everyone.
lollipoppi you are welcome.

Thanks sirzy. Am fresh from surgery and the NP seemed unconcerned by it all, which was a comfort, and started him on peak flow meter for 2 weeks. She didn't really explain why but
explained what I was recording. No medication, tho. I am happy with this. Back in two weeks!
As he has just started school, I want him to be on top of the inevitable chesty coughs and infections.
How are things with you?
I really hope that we all have positive stories to share through the Winter.Good luck everyone.
lollipoppi you are welcome.

Sorry about repeated posts; still trying to master the technology. Oooops.