Can we start a new asthma support thread now dreaded winter season is looming?

[Knackeredmother]

Hi,
I can't seem to find the old support thread. I lurked on it during many long, lonely and frightening nights and admissions with ds over the past year and a half.
My ds is 21 months now, was hospitalized at 8 weeks severe bronchiolitis (really thought he would die) then every 3-4 weeks since whenever he gets a cold. No symptoms in between colds but a wet, crackly chest with some wheeze with every cold. Plus of course the dreaded tracheal tug and sternal recession that heralds an admission.
It is all so bloody draining and heartbreaking!
We are just starting with a new bout today after a whole 8 weeks of being well. I am debating whether to call in sick for my nightshift tonight or leave poor hubby with an inevitable hospital admission AND our 4 year old!
Anyway, would be good to hear from others going through similar so we can all support each other ( or direct me to the original support thread!)

Much better night, managed to get sats up to 96 at one point :)

Has the specialist seen him yet? Hopefully you might get home later today x

Seen the specialist who doesn't want to change anything while he is poorly so is going to see him in clinic in a couple of weeks to see how he is recovering. Also wants to do some allergy testing to find his triggers which will be useful to know!

Hopefully home this evening!

Thinks it's always helpful if they see them when they are unwell x hopefully u are home and recovering x x

Ye your right. He spoke a lot of sense which was good and allergy testing wasnt something which had even crossed my mind.

As soon as pharmacy get their arses into gear we will be going home!

allergy induced asthma? Good point.

Our respiratory consultant also hardly ever gets involved when DD1 has an attack as the treatment for an acute attack is usually the same, pred, Ventolin, O2/nebulizer, anti biotics if needed.

Ds1 has severe allergies as well as asthma so we have epipens.
Ds2 has just had bloods done for allergies. We are lucky to have an amazing relationship with our consultant and he is bleeped whenever they are admitted x x

Hi
Sorry everyone has been having a bad time. Ds has had the whole time of school. Took him to the park today and he managed five minutes before getting tight and coughing needing 10 puffs of ventolin to sort him out.
Really dont know how long to leave him. Went to the gp today and they said just to carry on. He has got GOSH appointment on Friday next week so will see what they have to say. I have got no idea what has triggered this of either.

sirzy hope u made it home x x
Ds1 is looking and sounding so much better. We have got to take im for a repeat x-ray this afternoon so hopefully we won't be hours on the ward.

Yes we are home :) still got a long way to go but hopefully he is well enough to stay home!

Hope the x ray goes ok!

Well they decided not to re Xray as his chest sounded so much better x x they have made him an appointment for 4 weeks x x

Thats good news Ali! x

my son is 2.7 and was in hospital last week they have put him on the white inhaler which seems to work wonders as the blue and 10 puffs did not work and distressed him. The white is atrovent and he only needs one puff every 4-6 hours. Has your son had the white inhaler?

He had atrovent when he was younger and it wasn't particulary effective with him, although when he has had it mixed with salbutamol in Nebs it has worked well.

Hope your Ds is on the mend now!

Got to share. Ds has just been playing with a teddy, got his drs kit to listen to his chest and do his temp then went to get a peg, stuck it on teddies finger before announcing "sats 96!" - I think someone has spent to much time in hospital

that is very cute.

knock knock !! Please can I join??
Pretty new to MN and seem to be a little late into this thread but feel very much at home reading all your posts!
DS 18mo diagnosed with asthma, at 13mo after 7 hospital admissions and family history, I've just posted in health about his current situation if anybody has 2 mins to take a look and give me any advise?
X

sirzy he sounds a very switched on little man :)

Ds1 went back to school today but only lasted untill break as his eyes swelled up and was wheezing :( they had given eye drops and piriton before I got there and he still lookes awful x

Welcome mothership1 x

Welcome Mothership!!

He is, he copes much better with it all than me thats for sure! I guess he has never known any different really!

Poor thing, hope he is feeling better soon. Do you know what caused the reaction? x

He's got hayfever so I'm thinking pollen but not 100% sure.

Welcome Hothead!

Does he have any preventer medication?

Strange you mention croup, DS has had 2 big asthma attacks which both came on within days of him having serious croup attacks. I am dreading his next croup attack.

hothead this is quite similar to what happened with DD1. Initially she only got asthma when she was ill. Think they called it asymptomatic? Anyway, after several trips to A & E, fortunately a respiratory registrar was on duty and he put her on a program of preventers. She was referred to the asthma nurse and eventually the respiratory consultant (all at Children's Hospital). She is not 5.6 years and it's better. She still gets some quite severe attacks, but at least I know what to do. She's on Singulair, Seretide and ventolin as needed.

Croup I find is more in the throat and at least DD1 sounds like a seal when she coughs. If in doubt, I look at her chest when she breathes and observe how hard she is working.

I'm not sure that being the parent of a severely asthmatic child is an exact science, but probably more of an art combined with a bit of guess work.

Oh, and every single time I wasn't sure about her breathing and taken her into A & E no one has ever said to me either I've over reacted or that I've wasted their time. So, if you're not sure, default is to take to A & E. I don't bother with out of hours, mainly because they don't have the facilities, and also our GP said to take her straight to Children's Hospital. But if you have a good out of hours, then great.