Can we start a new asthma support thread now dreaded winter season is looming?

[Knackeredmother]

Hi,
I can't seem to find the old support thread. I lurked on it during many long, lonely and frightening nights and admissions with ds over the past year and a half.
My ds is 21 months now, was hospitalized at 8 weeks severe bronchiolitis (really thought he would die) then every 3-4 weeks since whenever he gets a cold. No symptoms in between colds but a wet, crackly chest with some wheeze with every cold. Plus of course the dreaded tracheal tug and sternal recession that heralds an admission.
It is all so bloody draining and heartbreaking!
We are just starting with a new bout today after a whole 8 weeks of being well. I am debating whether to call in sick for my nightshift tonight or leave poor hubby with an inevitable hospital admission AND our 4 year old!
Anyway, would be good to hear from others going through similar so we can all support each other ( or direct me to the original support thread!)

Often steroids are given (normally a 3 day course), or in serious cases oxygen is given in order to keep SATs up higher until everything starts working properly.

Our hospital has actually stopped using nebs as much and only use them if the child in on oxygen, they give 10 puffs of ventolin as needed instead. For DS that is much better as he get very distressed with nebs but is fine with inhalers other than at 2am!

Our hospital tends to start oxygen when sats fall below 89, Ds was around that mark when we went in last week but just avoided oxygen thankfully!

I think for it to not respond to Nebs/oxygen/steroids at varying levels is pretty rare and thankfully we haven't been there with Ds (although we have when he had bronchiolitis) but it would be into the intensive care/adrenaline side of things I guess but I really wouldnt worry about that side of things as it is highly unlikely to happen xx

Hi
Ds is slowly getting better he has managed to mornings at school and is coming home exhausted. He is still on ventolin every four hours every time we try to reduce it he gets bad again. Have to wait and see what they say on Friday.
Ali don't know were you are but ds hay fever is bad as well at the moment.

Hothead There is some sort of link so well worth you looking in to

Cedmonds glad he is on the mend. We are still needing ventolin 4 hourly here, I tried to spread it out today and we managed 4 hours 15 mins!

Cedmonds we are in the Midlands x ds1 has had another bad day and has spent the day on the sofa which is really unusual for him
He takes ventolin at least twice a day everyday x

alibobins We are in south east so not the same area. Hope DS is feeling better today
I took DS into school again only for them to say take him home again as they are going for a outing to local gardens and walking there and as ds is unable to do much they couldnt have him in school as there was going to be no one there. So he has been maked down as absent when it is there fault

That is awful Ds1 is currently asleep on the settee sounding like a little old man x

Hope everyone little ones are doing well now!

Ds seems to have finally turned a corner and can now get between 5 and 6 hours between needing ventolin. Hopefully he will be able to get back to nursery on Monday!

had a scare today. went to the school at noon to give DD1 her Ventolin and about an hour later her teacher calls and says she's visibly shaking . Part of her updated care plan is that she can speak to me any time she wants when she's poorly, and she said she felt horrible and wanted to come home. So, I pick her up, call the GP who says bring her in immediately. Get to the GP and her SATS are fine, slight temp, but he thinks the shaking is because of the Ventolin....

She seems OK. Made a request for 'Mom lasagne' so guess she can't be that bad

Wanting lasagne is a good sign!

When my sister has a lot of ventolin it makes her shake so it could be down to that.

Well we had a good day yesterday. Woke up today and it seems with sunshine comes hayfever :( just about managed a morning in nursery but is back to needing 5 puffs 4 hourly again! Damn you hayfever!

Ds1 is doing much better but ds2 is suffering now fed up face :(
Sirzy how is ds now?

I'm not surprised your fed up, I find it tough enough with one to worry about.

He is plodding on. Still only going 4 - 5 hours and needing 5 puffs at a time but as long as he keeps to the 4 hours that will do for now!

Ds2 is asleep finally next to me think it's been a combination of heat germs and the fact he's got huge tonsils not hoping for a good night and have got my bag packed just incase

Hope you get some sleep Ali x

How is your ds doing Ali?

Not well at all just waiting for a bed on the ward will update later

Ali how are things?

Joining in this thread, my 7 year old son Alex was admitted to hdu twice last year and spent just over 2 weeks there due to asthma attacks. He had never had asthma previous to this.

His asthma is definitely weather related but seems to be worse on the summer months particularly when the weather is cold one day and hot the next.

The last 2 days he has been particularly bad, sometimes having up to 10 puffs on his inhaler and yesterday we was up the gp's on a nebuliser.

Back on the prednisone now so hopefully that will help. For a couple of days at least.

Bit of a step backwards because at the last consultant appointment they wanted to wean him off his brown inhaler for the summer months but I don't think that is going to happen now.

Ds is still not well on oxygen and hourly nebs

Welcome jackjack sounds like your son has really been through it poor thing. Hope the pred works and he is feeling better soon.

Oh no ali poor thing, hope he starts picking up soon.

jack sorry about your son but would it be worth you querying whether he is on the right medication when you next see the consultant? Clenil had almost zero effect on DD1 (5) and she's now on Seretide 125 which seems to be working, or at least her asthma attacks are not as severe nor as frequent as they were. She is also on Singulair (chewable 4mg).

Ali so sorry. Are they going to do an x ray? It's difficult sometimes to pin point asthma and a chest infection. Hope he feels better soon and has a good night....

They have ordered a chest X-ray tonight on the ward rounds he has had a canula put in incase he gets worse
He did have a more settled period this afternoon so they just thought an attack caused by hayfever bit now he's gone downhill so the doctor wants more investigations