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Original poster

Can we start a new asthma support thread now dreaded winter season is looming?

987 replies

Knackeredmother · 21/09/2011 09:26

Hi,
I can't seem to find the old support thread. I lurked on it during many long, lonely and frightening nights and admissions with ds over the past year and a half.
My ds is 21 months now, was hospitalized at 8 weeks severe bronchiolitis (really thought he would die) then every 3-4 weeks since whenever he gets a cold. No symptoms in between colds but a wet, crackly chest with some wheeze with every cold. Plus of course the dreaded tracheal tug and sternal recession that heralds an admission.
It is all so bloody draining and heartbreaking!
We are just starting with a new bout today after a whole 8 weeks of being well. I am debating whether to call in sick for my nightshift tonight or leave poor hubby with an inevitable hospital admission AND our 4 year old!
Anyway, would be good to hear from others going through similar so we can all support each other ( or direct me to the original support thread!)

OP posts:
alibobins · 07/05/2012 19:30

cedmonds I really wouldn't send him in especially with the schools attitudeAngry

Hope the little ones stay out of hospitalSad

mumtoaandj · 07/05/2012 21:16

i am a teacher and i do understand why some schools donot give medication but refusing to help with an inhaler is stupidity. It is a complete necessity. I would ring your doctor and get them to write a letter to the school or get a good school nurse involved. If this does not work then i would personally go into school and explain the need for the inhaler- then say look if you cant help give the inhaler then my child cannot come to school when they have any sign of requiring it- stress that this will be many absent days...that should get them looking at their actions a bit better. My 2 year old has asthma and i had to train the child minder how to use it and when to use it etc and what signs to look out for in him. He himself knows when he needs it so i expect a school aged child to know when they require it etc and would never deny a child using their inhaler or asking for assistance giving it. (maybe that is wrong and a sackable offence but i dont care because it could also be life saving)

cedmonds · 07/05/2012 22:28

Hi
Well Ds in deff at home tomorrow his peak flow is still a 1/3 of what it should be . Will see how he goes tonight wether we stay at home.
mumtoandj The class teacher has said that she has got her hand tied and what be happy to give but isnt allowed. They were happier not great but better before the school nurse butted her nose in ! They have got a letter from the gp and GOSH and his local hosptal saying about the ventolin. His attendence is about 65% because of asthma there have been meetings with the gp me and senco head and school nurse and the gp is emailing school every time he is seen / of school. I dont know what else i can do really.

cedmonds · 07/05/2012 22:29

sorry ilove thats better at least there is a system in place now. No wonder she was scared poor thing.

ilovemydogandMrObama · 08/05/2012 09:43

system totally failed this morning. Got to DD1's school and there was a supply teacher there. I asked him if he would be there all day. yes. I asked him if he knew who DD1 was? He said, 'no.' Left to find SENCO who was concerned and promised to check on DD1 every couple of hours Smile and would call me Smile even if she was OK.

Going to see her GP this morning to try and figure out a plan for her asthma.....

cedmonds · 08/05/2012 11:00

Fingers crossed it works. ilove hope you get somewere with the gp.
How is everyone today? Ds is ok ish at least he is playing today.

Sirzy · 08/05/2012 11:40

Hope you get a plan sorted ilove

Ds is really struggling with his coughing at the moment which only normally bothers him at night. Any miracle cures to help calm coughing fits?

cedmonds · 08/05/2012 12:28

No miracle cures . I have put vicks on DS feet under socks before and that has helped sometimes.

cedmonds · 08/05/2012 12:29

sorry pressed send to quickly you have to be carefull with vicks etc with asthma.

Sirzy · 08/05/2012 14:27

I have heard that before but never been sure how it works with asthma, might give it a try though as is really annoying him!

cedmonds · 09/05/2012 11:03

How is everyone today?

Sirzy · 09/05/2012 11:30

I think Ds is going to cause a world shortage of ventolin the rate he is using it. 2 weeks tomorrow of pretty much solidly using it every 4 hours. I am waiting for the gp to start questioning my repeat prescription requests!

How's your Ds?

cedmonds · 09/05/2012 11:46

He still isnt great Sad Playing but getting very tight.

In betwwen them both i think there will deffently be a shortage. This is the second week he is on it every 4 hours. He got more pred today aswell. At least he is at GOSH next week. So will see what they say. THe gp said to keep him of school for the rest of the week at least.

ilovemydogandMrObama · 09/05/2012 13:33

Had a dreadful day yesterday. After dropping off DD1 at school and bursting into tears with the SENCO as the supply teacher didn't know who DD1 was (and therefore how could he be expected to observe how she was doing in regards to asthma), was going to GP to discuss managing at school.

Put DD2 (11 months) into car and manage to lock her into car with keys on the front seat. Emergency key didn't work. DH calls the police and they said they would only break the window (after checking ownership details of course), so DH breaks the window. Awful. DD2 is OK and she was able to see me the whole time, but was crying towards the end. Sad Now just waiting for the glass people to repair it.

Spoke to GP on the phone and he said he would try and get the community nurse to help with DD1's asthma at school.

Sirzy · 09/05/2012 13:35

Cedmonds that's what Ds is like. Thinking he may need more pred but that means a trip to a and e as our gp won't prescribe him it!

Oh no ilove that sounds a nightmare!

cedmonds · 09/05/2012 19:28

ilove poor you that sounds a nightmare.
sirzy why wont you gp prescribe it?

Sirzy · 09/05/2012 21:23

Coz he is an idiot!

Not sure really, everytime he has been there needing it we have been sent away with antibiotics instead.

Sirzy · 10/05/2012 15:27

Well Ds has been admitted. Sats 91/92 on 10 puffs ventolin an hour. Started on pred and antibiotics. Bringing in a respiritory specialist to see him.

ilovemydogandMrObama · 10/05/2012 16:17

sirzy Sad. DD1 was in the revolving door of A & E, but improved drastically when she got onto the right combination after a respiratory consultant changed her medication. Hope he improves soon...

alibobins · 10/05/2012 17:21

Well think ds1 was feeling left out! We have spent the day at hospitalSad he woke this morning wheezing and said it hurt to breathe so off we went to A&E.
He is on pred and increased ventolin his chest x-ray showed some patches so they want to review him in 48 hours x x

alibobins · 10/05/2012 17:22

Sirzy hope your ds improves soon x x

Sirzy · 10/05/2012 21:24

I love - that's what I am hoping. Although because he is so young (2.5) the options are limited as a lot of things aren't licenced for his age apparently.

Oh no Ali, hope everyone is better soon!

Ds is fast asleep for now. Still needing 10 ventolin every 2 hours at most and at last check his sats where down to 90 so I'm hoping that increases soon!

alibobins · 10/05/2012 21:55

Sirzy- what preventer is your ds on? He is the same age as my ds2 who is on flixotide, ventolin, atrovent, singular and daily piriton so far these are keeing him out of danger although we are still at the in and out of hospital stage with him too.

Hope your ds gets better soon x x

Sirzy · 10/05/2012 22:26

Currently on 400mg of clenil and singulair daily. Anti histamine and ventolin as and when needed. Good to know there are other options!

alibobins · 11/05/2012 07:43

Think there are more options but need to be consultant prescribed x x what kind of night did your ds have? Ds1 still sounds bad so I've given him a neb to try and clear some gunk off his chest x