my 11 year old has had tests for the last few months and finally received a diagnosis of Juvenile Absence Epilepsy Syndrome. Meeting consultant again on 10 Aug but been told already she will probably be put on Epilem to control the absences. She's had a tough time of it at school, with one boy in particular (who comes from what everybody thinks is a lovely home with very nice parents) calling her a retard, both to her face and when talking about her to others. Pre teens is often a rough path to navigate on its own, let alone having other challenges as she has. She has coped so well with it so far, and I think she's pleased we finally know what it is but is worried it will progress into full seizures. I've said we don't know, but whatever it is, we'll cope and am stressing that she is not ill, this is just a condition she has to be aware of. So far so good, but I wondered if anybody has any good reference material it would helpful for us all to read? Many thanks.