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Neurogenic Bladder. Does anyone have a child with this condition?

0 replies

letsgetloud · 02/03/2011 14:46

My 8 month son had a cystoscopy yesterday. The consultant was fully expecting to find a valve in his bladder. Instead he said he found that the muscle in his bladder is enlarged and or fatty. He said this muscle is contracting when it should be relaxing to allow the urine to flow out.

He advised he will probably grow out of this over next 4-6 months. Previous scans show enlarged kidneys and uretra (sp) and that he is not emptying bladder fully.

He will get another ultrasound in 8 weeks and then due a scan in June to check there is no scarring on kidneys.

I know there are far worse things that could be up with him but I am really quite upset.

Of course, I have looked it up on the internet and found he will need drugs, frequent cathetirisation etc when a bit older, if he doesn't grow out of this.

I don't think the consultant sounded optimistic about my son growing out of this condition.

Has anyone heard of this and if so do you have any advice for me?

Thanks.

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