Craniosynostosis - any experience?

[Den26]

My 5 month old son has been diagnosed with sagittal craniosynostosis, we are waiting for a date for surgery. Would really appreciate advice/success stories, thanks

My friends dd had this, and had surgery at GOSH. It went really well, and was totally successful, and at 4 she is gorgeous

My son has metopic craniosynostosis, he is due to get his date for surgery any time now.

If you haven't already found it, there's a great web-site called craniokids. You'll get lots of support and will read so many success stories.

Hi There - thanks Millie i have found this site. Good luck when the time comes :)