von Willebrands

[niniane]

After seeing a paediatrician today I've been told there is a possibility my 17 week old has von Willebrand's disease which is a blood clotting disorder. We've been referred to Yorkhill Children's Hospital in Glasgow for further investigation. I just wondered if anyone out there who has a child with this or who suffers from it themselves can give me any advice or further information.

my friend has this and didnt know until she was 17. My understanding of it is it comes in different levels so while some wont be effected or need treatment but others will. Why were they testing for it?

It was a standard blood test taken when she was admitted to hospital with what turned out to be a milk allergy. I've googled it and it appears there are three types, with Type 1 being the mildest and Type 3 the most severe. Apparently it is also hereditary although if either me or her father have it we don't know. How does it affect your friend?

t doesnt effect her at all.