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Children's cancer

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Something not right help!

9 replies

Lcw29 · 03/04/2026 07:58

I've got a gut feeling something isn't right. I posted in normal health chat too but I am concerned about something going un noticed and would appreciate advice.
My son is 6 . He's exhausted all the time. He falls asleep in the car and asks to close his eyes to rest. He gets leg pains alot especially at night. He's emotional all the time because of tiredness.

He's behind in school and I'm sure it's down to fatigue. He's not growing as he should as the doctor has said he's not pur on weight in a year or grown much in height.

Bloods showed low ferritin but he's been on iron for a month and no change. Also had low ALP which they said could be low zinc but we're trying everything and no success.

Constantly complaining of tummy pain and yesterday was crying in pain then had awful diarrhea. He has lymph nodes visible in neck all the time.

The last week he's developed what seems to be an eye tic. Rapidly blinking both eyes and says they hurt. Doctor couldn't find anything but said if he developed a headache to go to a@e.

He's under ent for possible enlarged adenoids but not going until may for an appointment.

What would you do?

I feel I'm not getting anywhere with doctors but know that this is not right. A 6 year old should not be asking to rest!

OP posts:
backagainohdear · 03/04/2026 12:19

Take him to the opticans if nothing then demand a full body MRI at the hostipal

hopspot · 03/04/2026 12:22

Could he have coeliac disease?

Bless him. Sounds awful.

Orangemintcream · 03/04/2026 12:25

Is there a children’s A and E near you ? Can you take him in?

I don’t have children but I’ve seen post ahere before from a woman concerned about her child and I remember thinking it didn’t sound serious but she was certain. She took him in and he was very poorly and received treatment. It wasn’t as serious as cancer but something was wrong.

Mother’s instinct is a thing. Trust yours.

whattheysay · 03/04/2026 12:28

Are they not investigating the lymph nodes in his neck? I would push for an ultrasound on these.

Lcw29 · 03/04/2026 12:43

Thanks everyone. We took him to the optician today and his eyes are healthy however vision isn't as good as it should be so next week has to have eye drops put in. He's been very emotional and tired after getting back. I think if he's really poorly again tomorrow we may take him to a@e. I'll definitely be on at the GP when they reopen.

OP posts:
swifttara · 03/04/2026 12:53

Don’t they say with low ferritin/iron that it can take several months to improve? Poor wee love. I know when I had low ferritin, I could have slept anywhere, any time, just bone crushing fatigue. When will they do bloods again?

Lcw29 · 03/04/2026 13:06

swifttara · 03/04/2026 12:53

Don’t they say with low ferritin/iron that it can take several months to improve? Poor wee love. I know when I had low ferritin, I could have slept anywhere, any time, just bone crushing fatigue. When will they do bloods again?

I think they're doing them in 3 months so I guess that sounds about right. I think the iron is upsetting his tummy though. I'd rather it be me.

OP posts:
Toddlerteaplease · 03/04/2026 13:42

backagainohdear · 03/04/2026 12:19

Take him to the opticans if nothing then demand a full body MRI at the hostipal

You can’t just demand a full body MRI. They won’t do it.

backagainohdear · 03/04/2026 15:46

Toddlerteaplease · 03/04/2026 13:42

You can’t just demand a full body MRI. They won’t do it.

I did for one my children who had raised inflamed lymph nodes for 12 months with serious limb pain, & the GP did the referral.

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