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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

Cancer, endo, something else entirely?

10 replies

ALLin26 · 23/08/2026 23:32

Think I’m looking for handhold, similar experiences… A few weeks ago I started with really bad pain in the lower right part of my stomach, very tender and occasionally stabbing. After a couple of days I went to the GP, who immediately referred me into the hospital with suspected appendicitis. Got to hospital who did blood test and CT scan; blood test came back as normal, with no inflammation. CT scan showed ‘nodules’ with ‘calcifications’, which I didn’t understand, and was told I’d have to stay in for further tests.

I won’t bore you with the fairly awful hospital stay I subsequently had, where I had to repeatedly ask for Gynae to come and see me, but it took three days for them to do so. During this time more blood tests were taken and I was told that there were no tumour markers present, which I took as a positive. There was talk of these nodules potentially having been caused by TB, and a further test needing to be done, but the results for this wouldn’t come back for a few weeks. After four days and a cursory exam by Gynae, I was released from hospital with antibiotics for a ‘pelvic infection’, only to be called a few days later by the Gynae team to be told I was being put on the two week cancer pathway and needed to come in for an urgent MRI and biopsy.

I was in for these on Friday and was discharged without speaking to a doctor. I’m still really unclear what people are looking for.

Has anyone had anything like this? I’m now questioning everything that I’ve experienced as normal over the years – I do have heavy periods, I’ve always had bad period pain, worse after the birth of each of my children, and have had pain during sex, all of which I have just assumed is relatively normal. I am of course freaking out that it is cancer – not to derail the thread, but I am currently also dealing with a child who was diagnosed with cancer earlier this year, so I’m also trying very hard to keep it together in front of the kids who at the moment know nothing and I’m desperately hoping for a positive outcome.

OP posts:
abracadabra1980 · 24/08/2026 05:57

I'm so sorry you are going through this OP-I suggest moving it to the Cancer section to perhaps get more insight from others. If it's any consolation I have had two years of 'referrals' for any different parts of my body, eg bladder, uterus, colon, throat, breast; all to rule out cancer. One scan came back with a white spot that could have been concerning but my GP explained that to me. It was all ok. Sometimes it's like learning a new language. Sending hugs 🤗

ALLin26 · 24/08/2026 06:57

abracadabra1980 · 24/08/2026 05:57

I'm so sorry you are going through this OP-I suggest moving it to the Cancer section to perhaps get more insight from others. If it's any consolation I have had two years of 'referrals' for any different parts of my body, eg bladder, uterus, colon, throat, breast; all to rule out cancer. One scan came back with a white spot that could have been concerning but my GP explained that to me. It was all ok. Sometimes it's like learning a new language. Sending hugs 🤗

Thank you so much for replying, that was a nice message to wake up to! Will ask for it to be moved.

I’m sorry for what you’re going through, that sounds like a lot 😖

OP posts:
P00hsticks · 24/08/2026 10:44

I'm sorry I can't provide any insight into possible causes or experience, but have a handhold from me.

Octavia64 · 24/08/2026 10:47

I have had similar but not with the suspected cancer.

was taken into hospital with severe abdo pain and discharged with antibiotics as pelvic inflammatory disease.

it wasn’t it was endo plus a ovarian cyst which eventually burst.

exploratory lap which I paid for privately (thanks grandma) showed severe endo

ALLin26 · 24/08/2026 14:11

Octavia64 · 24/08/2026 10:47

I have had similar but not with the suspected cancer.

was taken into hospital with severe abdo pain and discharged with antibiotics as pelvic inflammatory disease.

it wasn’t it was endo plus a ovarian cyst which eventually burst.

exploratory lap which I paid for privately (thanks grandma) showed severe endo

Thanks for replying - how did they not pick up on endo in the first place? I don’t understand why they’re not checking gynae issues out more rigorously at presentation 🤯

I’ve just stopped taking the antibiotics after a week and a half as they’ve been making me throw up and have made no difference to the pain. Was your pain from the cyst or the endo, do you know?

OP posts:
ALLin26 · 24/08/2026 19:05

Bumping for the evening crowd 💥

OP posts:
Pieceofpurplesky · 28/08/2026 02:08

Firstly I am sorry that your child was diagnosed with cancer and that you are having to wait for answers.
Where are the calcifications? It is good that the cancer marker was clear - was it the CA125 (that is for ovarian cancer)?.

Most calcifications are benign and they will quickly assess you and get you on a treatment plan if you need one.

Joliloily · 28/08/2026 02:20

It’s really good that you’re being thoroughly investigated. Waiting around for results is awful though. I’ve been through the mill with all that and cancer was found on my ovary. I had surgery to remove the tumour and all my reproductive organs. That was 12 years ago and I made a full recovery. Even when cancer is found, there’s so much they can do these days.

Anyway, I hope you get some positive news soon.

Joliloily · 28/08/2026 02:23

Just to mention the CA125 test isn’t a reliable indicator for ovarian cancer. My results were normal but I had cancer.

Pieceofpurplesky · 28/08/2026 02:29

It's all so hard to detect @Joliloily, mine was really high but has halved with the chemo I am on - but still really high.
@ALLin26the fact you are having all the tests is really good.

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