Sorry for the lack of updates - there's not been a lot happening. The Akynzeo worked brilliantly and I wasn't sick for days after the chemo. I started taking my regular anti-sickness pills a few days later, but only three times a day, and the sickness came back, so now I'm back on five a day.
I spent last weekend feeling rotten - nothing specific, just generally unwell and feeling awful. I was sick a few times and spent two days in bed as I didn't have the energy to get up.
By Monday morning I felt so bad that I wanted to reschedule the scan as I didn't feel up to leaving the house; DH had to bully me into it. Got there and I threw up in the waiting room. (I had taken sick bowls with me as a precaution. )
Anyway, once that was over, the scan went OK but I don't get the results until my appointment next week.
This week I've gradually been getting better day by day, but I'm still very weak and wobbly on my feet. At hospital appointments I can't walk from the drop-off point to the clinic; DH has to get me a wheelchair.
A friend's dad offered to loan a mobility scooter. DH declined on my behalf because I need to get walking and the scooter would give me an excuse not to. I was annoyed not to be consulted, as I think it could give me some freedom and independence that I just don't have now.
I have, however, arranged to borrow a three-wheeled walking frame. It makes me feel so old! But hopefully will help.
The only other thing is that I had requested a cancer psych referral and had the preliminary session yesterday. I want an outlet to express the feelings I can't share with other people, even DH, as I don't want to burden them with my deepest, darkest thoughts. I'll have six sessions, fortnightly.