In a&e just told I have a brain tumour

[Wells37]

Just that really. It's 2cm ish on ct scan symptoms for 5 weeks. I can't stop crying. I just sent dh home as kids are at home.
Terrified

All the best OP. Sounds like a plan is in place. Take it easy over the next few weeks and continue listening to those podcasts.

And good luck to your lad @BellaVita

I am so glad you now know what you are dealing with, and what the plan is. Brain surgery is huge, but recovery can be a lot quicker than anticipated. I was in for two nights. It was also less painful than I expected. What I found useful was to take a photo every day, so I could see the healing taking place. You may even get to the stage where you're able to say "oh yeah, I had brain surgery a few months ago" and kind of dismiss it - that may sound impossible at the moment, but it does happen.

You are absolutely doing the right thing avoiding Dr Google - that just scares the life out of me, and we already have the cancer doing that! It may not be curable, but it is treatable, so they anticipate you have a future to be treated in. That is huge. Take everything they offer, keep in touch with Maggie's and with the lovely community on here. Even in your darkest times, somewhere there will be light to aim for. It may be a sh1t experience, but you can do it x

Someone I used to work with had a glioblastoma and had surgery probably a year ago now. She's not back at work I don't think but I see from her fb that she's out and about meeting friends for lunch, etc. Wishing you a good recovery from the surgery and will be thinking of you.

Thanks everyone. Cried lots last night but feeling quite calm today. Dh has cancelled work today. Going to walk into town I think.
We went to maggies after the appointment last night so dh could phone my mum and dad somewhere quiet before we went home to kids. Dd is early 20s ds is 14.

His school are aware and have been good, his very good tutor has just come from mat leave thank goodness, as he wasn't so keen on the fill in one!

Dd work are being very good and letting her manage her time, between office and home. They said she can do school hours whenever she wants so she's home when ds gets home. Obviously he's not little but I think it's best there's always someone around after school at the moment. There's quite a big age gap and she's has always doted on him!

Going to go to yoga at maggies again tomorrow to talk to the personal trainer I can access and do another yoga session. Dh will work tomorrow but not all day.

Sounds like you have lots of support at home some positivity OP. We are all here for you and thinking of you x

They said if everything is straightforward with no complications and they can do it while I'm awake I will only be in hospital 1 night! I should be up and pottering the next day

Oh my word. What wonders they can do these days. Fingers crossed for you. Sending positive vibes for you and the family.

Thank you for updating us. Modern medicine is marvellous.

They really can do wonders. A friend recently had brain surgery and was up and about quickly, cracking jokes over coffee (at home) with friends a couple of days later. He brought his wedding forward and had an intimate ceremony a few days before his operation, having been with his partner for a long time.

Thank you @Drinkdrinkduuurink x

@Wells37 have you been allocated a specialist social worker? If not, ask Maggie's about them filling out forms for you to obtain a blue badge and PIP - Personal Independent Payment. Anyone with a brain tumour is entitled to these benefits.

Are you at the LGI? We live in York but go to the LGI and St James (for treatment). Both hospitals are fantastic.

Sending the very best of wishes OP.

That's amazing @Wells37, awake and home after one night - result.

Kids who support each other, even better, mine HATE each other!

While I'm here <<waves at @BellaVita >> I went to lgi for surgery too, and was at Maggie's at st James yesterday.

You're doing brilliantly @Wells37 and so glad to hear about the op. That is amazing. Modern medicine eh?

Good for you with the yoga and the DD/DS looking out for each other. That's important.

Keep us up to speed as and when you feel like it. We are cheering you on from the sidelines.

DS1 was at Maggie's too yesterday in the morning... went for an assessment, bloods and a look around the ward where he will be going tomorrow.

The staff at both hospitals have been amazing.

Wishig you and your DS well for tomorrow, BellaVita.

Yes, my mother was discharged at midnight, I made them wait until I arrived to fetch her, two and a half hour journey. She went back in next day after visiting her GP and never came out again. They are inhumane.

Best of luck to your ds @BellaVita x

@angela1952 I am so sorry to hear that. You are right they really are inhumane.

Sorry, I went off topic

Yet another complete stranger signing in to wish you well @Wells37 .

So sorry to hear your update. I have been following the posts.
I work in clinical trials. They can work wonders in people with not curable conditions.
I wish you and your family lots of love x

I hope everything goes smoothly tomorrow, @BellaVita

Wishing you lots of luck and sending strength.

Best of luck @Wells37 and @BellaVita . I hope all goes smoothly for you and yours and you have a first class outcome.

Maybe can't completely cure it now, but no telling what's possible in the future.

Neurosurgeons, ime (work) are the kindest, calmest, most rational people in the health service. 'It's not brain surgery', it most definitely is!

Best wishes for surgery/good results.