Suspected sarcoma

[Paigey97]

I found a hard lump on my lower shin bone around 7 weeks ago it was small and painless at first. It started to grow now being 3cm, had some swelling and felt tender so I went to my gp. I've since had an x ray, bloods and an ultrasound yesterday. My doctor rang me this morning and said he's had to refer me to the sarcoma specialist and I'll need to go for an MRI so they can get a diagnosis of what it is. I've been out of my mind with worry and anxiety. I'm 26 and have 2 girls 5 and 2. I'm just thinking the worst and would like some reassurance or if anyone has been through something similar. Thank-you

I was recently diagnosed with a rare sarcoma, and had surgery last week. Surgery hasn't been easy. You have to focus on getting to see the best consultants available. Mine was misdiagnosed upon removal in 2019, and then misdiagnosed when it grew back and got removed again in 2023. It went off to molecular genetics for testing and then they found the cause. They also found tumours in my gallbladder and a recurrence in my mouth recently. Good luck.

I’m sorry no one replied. How has it been going ?

Hi OP
I hope you are okay?
I had a sarcoma in my uterus wall ( mistaken for a fibroid).

I've had a total hysterectomy now.

Still waiting for biopsy results. Sorry to hear that you have had to have a hysterectomy How are you now

@scoobydoo1971 a sarcoma in a your mouth? That's not good. Are you okay now?

I'm all over the place to be honest. I had my MRI on the 3rd December and have my appointment with the consultant at the cancer clinic tomorrow. So sorry to hear you went through that its awful, are you ok now?

@Paigey97 hope your appointment goes well tomorrow. These sarcomas are a real horrid thing. Mine was huge in the wall of my womb. The hysterectomy got shot of it and no further treatment required for that ( thankfully).

Keep us updated x

@Paigey97 how have you gone on

I had my appointment today. The consultant said that it isn't cancer or a tumor that they can see from all the scans thankfully but they don't know exactly what it is maybe some blood vessels that have got tangled and caused swelling and irritation. I have been given an open appointment letter so if anything changes in the next 12 months I can give them a call and go back in to be checked again.

@Paigey97 thanks brilliant news

Oh wow! That's amazing news. I'm so happy for you

How are you doing @scoobydoo1971 ?

How are you feeling after the hysterectomy @Enigma52 ?

Sorry, I posted too soon. Why did the docs think it was a fibroid?

I am ok, thanks. I just had another surgery today as I have another suspicious lesion in my mouth. I have a bit of a wait for the results now and a hole in my mouth. My hand is healing but I have nerve and grip damage, which is a bit frustrating. Fair play to all the health professionals who have managed my care lately. They have been brilliant.

I had surgery today. There was proven sarcoma in my hand, which has had a prior operation. I am waiting for the results now for my mouth, and glad the operation is all over!! Thanks