Hi Ellie, I was in your position a few months back with my 7 month old Ds2. He was born at 33+5 weeks and weighed 4lb 8oz, he left SCBU weighing 4lb 5oz. I was fully BF and he wasn't gaining weight at all. Over 6 weeks he dropped from the 50th to below the 0.4th
A feeding tube was inserted to give him EBM after every BF, he gained weight, tube removed, weight lost, tube in, tube out from oct-dec. I was also told that I would have to stop BF and FF if he didn't gain weight. The week I was told that, Callum gained 9oz purely on BM. But the following week he only gained 2oz. We did give in and gave him this high energy formula that the hospital gave us and yes it did make him put on weight, so much that he went back up 2 precentiles.
I was then finally seen by a BF councillor in feb and was given lots of advice, and she said to stop with the formula and go back to full BF, which we did.
Callum has been on solids for about 5 weeks now, with BFs and the odd bottle of formula here and there (he can be very stubborn and refuses to feed sometimes) and now is dropping back towards the 0.4th which is where me and my HV think he is supposed to be. The high energy formula gave a false reading.
He is still BF and I am proud of myself for keeping at it, when so many HCPs were being so forceful with me to give up. I believe that Callum is a small child and will always be a small child.Giving him the formula gave an Artifitial weight gain.
Please phone one of the numbers, I phone the ABM and the lady I spoke to was very helpful. I know that weight gain is the be all and end with HCPs but sometimes they don't know what to do with a 'sereve FTT baby' (as Callum was discribed, though in truth he was just catching down) and all they see is 'must get weight onto that baby'
Callum was a good weight for 33 weeks but they forget that I had diabetes in pregnancy and I struggled with my diet control, so he was bigger than he was supposed to be.
I had 2 weekly weigh-ins at the start, which went to weekly at about 3 months. After seeing the BF councillor I stopped having him weighed each week, and now I have him weighed when I can bothered to go to the BF clinic (he is 13lb 8oz now at 7 months) but as a result of my experience with BF a premmie and facing so much pressure and resisting it, I have been asked to train as a 'Breastfeeding peer supporter'
Sorry its so long, but I just wanted you to know that you are not alone and there is support for you out there.
Good luck