Preventing tongue tie next time - alternative to folic acid (genetic malabsorpsion?)

[CityDweller]

I'm hoping someone will know/ remember what I'm talking about here...

A while ago there was a thread on here that linked to some articles about how a genetic inability to properly absorb folic acid might be related to midline issues (e.g. tongue tie, foreskin problems) in infants. DD had significant tongue tie that was a nightmare in the first 6 months. While we're still bf now (17 months) I'm keen to do all I can to not go through that should we have another baby. In the thread I'm referring to, someone was talking about how some people could/ should take something instead of folic acid, but I can't remember any of the details. Does anyone know what I'm talking about???

Watching with interest as both my DSs have TT and foreskin problems. Want to have a third but the TT troubles particularly have been so stressful!

I know what you are meaning, but I can't remember the specifics either.

Something about folate rather than folic acid IIRC. But I don't think there is "proof" of any of this at this stage because it is all fairly new.

It is very interesting though.

I just came up with this www.ncbi.nlm.nih.gov/pmc/articles/PMC3250974/ talks about taking l-methylfolate instead of folic acid as it's more bio-available.

Hi

I think I may have this genetic issue - DD has a few minor midline issues incl TT and sacral dimple, and my dad also shows signs of it as he's always
low in the relevant vitamins/minerals despite supplements and a good diet. I think it's called the MTHFR gene (I may have the letters the wrong way round).

I'm now pregnant again and I am taking antenatal vits made by this company which are the only ones I found which give the recommended folate dose entirely from methyl folate rather than folic acid (Pregnacare Max does 50/50 folic acid and methyl folate). They also have more bioavailable versions of other vits eg B12 - I believe those with the mthfr thing also tend to have issues absorbing b12.

anyway who knows if it will make a difference but I feel I'm doing what I can. They are on the expensive side mind you but on the other hand I think I'm paying for quality and not loads of advertising.

The fact that Pregnacare have made their top range product 50/50 folic acid and methyl folate makes me think it's not just speculation?

We were told it was genetic and them did discover links in family.
Struggled for a few days then saw maxio facial (I think) surgeon. The change in feeding was almost instant.

I did a search for methyl folate on mumsnet and discovered a couple of interesting things:

1. there are quite a few ladies having long term difficulties conceiving, who think mthfr may be linked to that and so are taking methyl folate

2. underactive thyroid (which I also have) may be linked to or, alternatively (different theories exist) may have similar effects to mthfr.