Hi everyone,
I posted a few months ago about the death of my lovely nephew James. He was 18, fit & healthy and died with no warning, no chance to tell him how loved he was. We were entirely broken. I received some lovely messages of support on here. Thank you.
My sister and I have subsequently been diagnosed with Brugada Syndrome which we assume was also the cause of James' sudden cardiac arrest.
8 months after his death and we are ready to start to do something positive in his name and hope that from our darkest hours something good can grow. We have started a charity DiPPs (Defibrillators in public places) to lobby, support, persuade and fund schools, businesses, shopping malls, music venues etc to have a public access defib installed.
If any of you are Facebook users we would LOVE a 'like' to help us bring our fledgling charity to public attention.
www.facebook.com/dipps4james
we also have a twitter profile @dipps4James
Thank you so much.