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my husband is critically ill, i am terrified

377 replies

lemontruffles · 01/01/2013 04:38

My husband has severe copd (chronic obstructive pulmonary disease) and yesterday had a severe exacerbation. This means he couldn't breathe properly and is now in hospital.

He is on a ventilator, and not responding well to this treatment after about 40 hours on the ventilator. I am utterly terrified.

I've come home to try to sleep, but can't.

He is only 61. He is terrified too. I simply can't think straight and am in a new and appalling world where nothing is right and everything is terrifying. I can't stop shaking with fear. Please hold my hand.

OP posts:
lemontruffles · 03/01/2013 16:55

Northern, you understand so much about grief. Yes, crushing sadness, mornings worst, don't know about the gut stuff yet although can't eat more than a mouthful at a time.

Dreams, yes, just breathing is all that can be done sometimes.

OP posts:
Oblomov · 03/01/2013 17:05

So sorry to read this. Read your Op the other day and felt so sorry for you. Hadn't even noticed your next dreadfful post. So very sorry.
Tell us more about your lovely dh, Op. If you want to. I sure like reading about him. Its so nice to read such nice things, from someone who truely loves their dh.
I love my dh so very much. And I like hearing from other people who do too.

I am so sorry , I have no practical advice, because I have never lost anyone.
But we are all here to support you. Listen to you. That, we are very good at.

IslaMann · 03/01/2013 17:21

I'm so sorry for your loss. You are very lucky to have had a love such as this. He was very lucky to have had you in his life and to have slipped away with you by his side. Sending you love and strength.

sittinginthesun · 03/01/2013 17:50

Disbelief is normal too. Your body has switched onto automatic pilot, and in one way you feel numb, but the pain keeps breaking through? A friend once described it like standing on a beach, and being constantly knocked down by the waves.

After time, you will be up on the cliff, watching the waves. They won't be as powerful. I do know, though, that you may bit want to be there yet, because you actually need to feel this pain to stay close to your lovely DH.

I lost my Dad four years ago, and watched my Mum go through this. If she was reading this, she would say, let it wash over you. fresh air, and walks when you feel well enough.

Oh, and when the shock does wear off, you may feel a bit flu like. Normal too. My grief counsellor amazed me, as she could predict my physical symptoms, week by week.

RobinsBaubleSparkles · 03/01/2013 18:18

I'm so sorry LemonTruffles. Your children are similar ages to my sister and I when we lost our dad. She was almost 23 and I was 13.

I hope you get lots of support in RL. Love to you all xx

Susieloo · 03/01/2013 20:29

Thinking of you lemon xx

BettySuarez · 03/01/2013 20:36

lemon sometimes I awake in the middle of the night listening to my husband breathing and watching him sleep and the love that I feel for him in those moments is so unbelievably strong, it is almost overwhelming and I find myself crying out and struggling to stay calm. The thought of loosing him, him simply not being there anymore is just unthinkable.

My worst nightmare is now your reality and I am so desperately desperately sorry Sad. I wish more than anything that you and your family were not having to face this.

Betty x

OverlyYappyAlways · 03/01/2013 20:40

So sorry Lemontruffles, your DH sounds lovely.

magimedi88 · 03/01/2013 23:14

Dear Lemon,

The love you had for your husband shines out from your posts.

I so wish that you were not having to deal with this awful situation and my heart goes out to you.

All I can say, to give you a crumb of comfort, is that I am sure you are pleased that it is you left grieving, not him.

I love my DH more than life itself & I always hope that I am the one left to cope.

I would not want it for him.

May strength to bear you through the hard days come to you.

You are in my thoughts.

xxxxxxxxxx

friendlymum67 · 04/01/2013 00:37

Lemon - it could almost be my dad the way you write. He suffered from a rare illness which then attacked his lungs. In less than a year his health deteriorated dramatically and the once active man I knew and loved, who enjoyed life to the full, who was a big kid himself at times - especially with the grandchildren and who was my rock after my husband left me - was dependent on oxygen 24/7. To watch him deteriorate like he did was excruciating Sad

He rarely complained even tho every breath was exhausting, his resilience was amazing and his courage even more so.

When he died, I went into shock. I functioned on auto pilot. It didn't seem real. People offered me condolences etc and I remember thinking, this doesn't feel real - I was so detached. I felt so, so alone.

What Northern says about getting my mum thro the funeral and then it hitting me, is so true. My best friend said to me many months later, that she was so worried about me as I seemed so calm - then the grief hit me - it was raw and overwhelming.

Grief is frightening, overwhelming and lonely. My heart goes out to you. Be kind to yourself, wrap yourself up in a blanket if it helps. I wish I could take your pain away x

ChippingInLovesChristmasLights · 04/01/2013 01:29

Any age is a terrible age to lose your Dad, your rock. I was in my 40's when I lost my Dad and I felt far too young - teenagers/20 year olds, it's just so unfair. I so wish I could take this pain away from you all, to bring him back for you.

xxx

trulymadlydeeply · 04/01/2013 04:35

Thinking of you, Lemon. The early stages feel so surreal, don't they? My sister and I cracked jokes and developed a very dark sense of humour in the immediate aftermath of our father's death. We felt so detached, as though it was happening to someone else.

It changes minute to minute ... Just keep breathing!

Love to you. Xx

lemontruffles · 04/01/2013 05:12

Another sleepless night, and feeling numb.

I found out today that the phrase 'seeing it in black and white', meaning that the words written down give the words meaning, is true. I had to register his death. Seeing his precious full name on the piece of paper, and 'widow' next to mine , and the causes of death, was so difficult. That's his name, it belongs to him, it doesnt in any universe belong on a lonely piece of paper without, oh how to put this, being attached to the real living him. His name now doesn't belong to someone who is alive, and how can that be true? That was overwhelmingly hard to understand, but there on the paper in front of me was proof that he isn't alive. The words really did look carved in stone on the paper. I still can't believe this has happened though; bewildering panicky confusion. So exhausting. Such pain.

But the panic has been very hard since.

Friendly your dad sounds amazing, a man of great strength and love for his family.
betty I'm a bit like you. I used to feel beyond lucky and happy most days to be loved by, and to love, my husband. Great waves of happiness at all sorts of random times when we were together.

I can't write properly today because so tired and so numb.

We were normal people. We had arguments a plenty, we could both be a bit, well, grumpy and argumentative sometimes. Sometimes he drank too much - and get very loud and daft. He could have a stubborn streak a mile wide which could be really frustrating to me. The last year, when he deteriorated badly, couldn't breathe without oxygen, couldn't walk anywhere, was terrified to go out in case people were smoking and the air quality was poor, this year was stuffed full of our fears and frustration, and sometimes neither of us dealt well with these pressures. Too many ridiculous arguments about very little. But oh, we loved each other, and trusted each other, without limit.

Thank you all for listening to me.

OP posts:
saffronwblue · 04/01/2013 05:21

Lemon I saw your original post and am so sorry for your loss. You write so movingly about your husband and your marriage. It is the flaws and the pressures that make a relationship solid as well as the deep love.
Just accept that your body, heart and mind are in massive shock. Try not to make any decisions in the next few weeks- you may find that you are forgetful and find it hard to take in any new information.
You and your family are in my thoughts.

Solo · 04/01/2013 05:42

Oh Lemon I am so sad for you and sorry for your loss.

You have such wonderful memories of a fabulous life with your dear husband ~ I can 'see' them in your words.

He will always be with you, in your memories and in your heart.

Please take care of yourself.

madasa · 04/01/2013 07:50

Thinking of you Lemon.
Your husband sounds a unique and special man x

Xenia · 04/01/2013 08:53

You are doing so well. It is perfectly normal to find it hard to believe the person is not there. Yes 13 (the youngest) is quite young to lose a parent. I don't know if you are older than or were younger than your husband but women are often the ones to have to bear the loss of the other.

You do need to eat and sleep if at all possible or the body cannot function properly, although it must be hard to force yourself to eat if you don't feel like it.

Rosa · 04/01/2013 09:19

lemon it sounds as if you were a 'normal' couple with lots of love and the usual ups and downs I am sure many people can relate to your relationship. It sounds as if it was a terrible last year - tough on both of you. But the way you write about him shows a huge amount if love and respect. Nobody can take that away from you even if sadly he is no longer here to appreciate it.
How is your ds coping ?

NorthernLurker · 04/01/2013 11:14

Can you nap at all or if a friend drove you around in the car would you be able to sleep then? I always go straight off as a passenger in a car.

Susieloo · 04/01/2013 20:59

Just posting to say I'm thinking of you, hope you managed to get some rest x

tigerdriverII · 04/01/2013 21:12

Lemon, my heart goes out to you. Your DH sounds a lovely man and you had something very special. You will get through this, and remember him in the best of ways. Lots of hugs Tiger xxxxx

ssd · 04/01/2013 22:56

lemon. I'm so so sorry for you and your lovely family...I lost my mum recently and your feelings are very familiar, just accepting what has happened seems like climbing up a mountain just now, just impossible, and anything else is too much to deal with

I remember reading something immediately when I lost mum and was feeling so crazy, you're not mad to have these feelings, its grief, its normal, even the overwhelming terrifying panic is normal, its just not normal to you as you've never been here before, but however you feel is normal to your situation

I'm so sorry xxx

NorthernLurker · 05/01/2013 12:11

Lemon - I saw this website linked on a Guardian article today. Thought it might be of help to you. The article was about the work a hospice has done with bereaved children and families - not trying to 'get over' a death but learning to 'bear to be with it'. I read it and thought of you. Hope you've had a little sleep at least.

LottieJenkins · 05/01/2013 12:39

Lemon, i have been thinking of you and your family. I remembered you in prayers the other night at hurch and lit a candle for your dh when i lit one for mine and my Jack too................

onlyjoking9329 · 05/01/2013 12:42

I'm so sorry that your Husband died. You are most likely in shock, everything feels different, looks different, is different. Northern gives sound advice and was a huge support when my DH died. The early days feel confusing, bit like being in a nightmare where nothing adds up. Memories float round and even something like setting or eating at the table feels too difficult. Take all the support you are offered, people are mostly wanting to help. There are a few online forums, WAY was very good in the earlier numb phase, just meeting other people locally who were widowed was supportive, I've made life long connections both online and in real life. Please let someone help sort out the paperwork and arrangements it's upsetting to keep having to talk about it all, it never feels right ticking the widow boxes. Winstons wish can offer advice. Depending where you live there might be a few counselling supports for yourself and the children.
Be kind to yourself, sleep and rest when you can. Eat and drink whenever you can, I forgot to do that bit and lost lots of weight.
The world must seem an uncontrollable place right now. Keep typing/talking, there is always someone here, who can hold your hand and listen.