Please or to access all these features

Bereavement

Find bereavement help and support from other Mumsnetters. See also your choices after baby loss.

"You Light The Skies Up Above Me, A Star So Bright You Blind Me" Remembering all our precious children.

999 replies

fioled · 25/08/2012 11:45

For my beautiful baby Anabelle Violet, loved and missed to the moon and back, always xxx How hard we wish that you were here baby girl.

Twinkle twinkle little star,
Up above the world so high,
Like a diamond in the sky.

For all our babies and children, big and small xx

OP posts:
twinklesunshine · 16/09/2012 22:22

Mias I am glad that yesterday went as well as it could have, I was thinking of you.

I also find it strange that people don't mention his name, and just say sorry to hear what has happened etc, I know what has happened, you don't need to sugar coat it for me. I also find it odd that not many people will say his name in the same sentence as the word died, they either say when M?.and then just tail off, or use another word like went, left. Again, I know he died, I am not going to be upset by the word.

I know that some people don't like to refer to their own child as having died, which I can completely understand, but as I am comfortable using it in the context of my son, I feel that others should too.

Weird.

I went to a naming ceremony yesterday, and have another one next weekend, I am definitely glutton for punishment. Ugh its so hard, and what with having that wedding a few weeks ago I am all occasioned out.

xxxx

Mogwai200 · 16/09/2012 22:53

I notice that some people won't say his name. My in-laws don't bring him up at all but I do it on purpose when they're here.

whiteandyelloworchid · 16/09/2012 23:19

oh yes i get that too

peopel saying, oh are you going the THE grave

also we should be getting our sons headstone installed this week and even dhs grandparents said today, any news on when THE stone is coming

and lots of when IT happened
or when EVERYTHING happned
etc etc

i feel like saying, and i almost have and probably will next time, its ok to say baby orchids name you know.

its like everything is so awful, they cannot bring themsleves to say the name, as it makes it seem more real to them

3girlies · 17/09/2012 19:39

miasmummy happy birthday to mia from Saturday, sorry I have not been on to say it, but thought of you on the day. It will be Flora's birthday at the end of October, first one without her, just don't know how we will be.
It is 11 weeks today since Flora passed away, just feel like we are in a terrible nightmare from which we will eventually wake, 77 days in a nightmare. Going to work is using up time for me, just feel like that about it.

shabbatheGreek · 18/09/2012 08:38

Thinking about Hazy today. Will light a special candle today for your precious grandson. Happy Birthday little man - loved forever by all your family. xxxx

frasersmummy · 18/09/2012 10:32

happy birthday jayden.. thinking of you and your family hazy

Dont tell pregnant women your baby/child died for fear of upsetting them ... its mad isnt it..
Mums need to be aware of the risks and that there are families out there who despite having suffered this terrible tragedy have rebuilt a new normality for themselves and can even smile again

We need to raise awareness ... I thought stillbirths were something that happned in the dark ages..seriously I had never heard of it happening till it happened to me.

And what if they are upset ??? surely those of us who have lost our child are carrying more pain than we could ever cause by talking about our children Angry

rant rant rant ...

shabbatheGreek · 18/09/2012 10:45

Rant away FM. xxxx

chipmonkey · 18/09/2012 20:10

A lady came in to the practice today. I recognised her as being one of the Mums from the SCBU where Sylvie-Rose stayed but her baby was discharged before Sylvie-Rose so she didn't know she died. She asked how Sylvie-Rose was and I burst into tears.
She was lovely and gave me a hug. Despite the fact that she is very heavily pregnant with another baby.

whiteandyelloworchid · 18/09/2012 21:32

aw chip (())) that must have been tough
sounds like the lady was very nice

theres a lady, another mum at dds school who has a baby same age as my son, and i find it difficult tbh atm i just avoid her as much as possible which is a bit of a shame as shes a lovely lady

chipmonkey · 19/09/2012 00:05

And there's another lady who had a baby the same time as me, white, and I think she avoids me now for fear of upsetting me!
Other babies are difficult.Sad But I did find that when I held dh's niece, who should be the same age as Sylvie-Rose, it wasn't actually as bad as I thought it would be.

whiteandyelloworchid · 19/09/2012 09:13

you know i havent held a baby since my son died
Sad
just dont want to

chip or anyone else, do you ever go to any support groups? im thinking of trying sands next month, but scared it might make me feel worse

havent sleep well all week, every single night i wake up for two hours, think i shall try a good walk today any other ideas wha i can try ?
i'm just all wound up, i'm going to hide that thread in the news as i think its actually disturbing me

chipmonkey · 19/09/2012 13:07

white, seriously just hide the thread. It's not worth it. Far too upsetting.

I have not gone to any support groups but I have put my name down for a group, should it become available. To me, this is my "group". The ladies on this thread have been a much better support than any RL help.

whiteandyelloworchid · 19/09/2012 14:45

chip, i hid it this am, feel better for it.

i think i'll get more from online support than from rl groups as i can openly talk on here, and on sands boards etc
not sure i can be THAT open with people i don't know although we will see
i just keep getting asked to try it

expatinscotland · 19/09/2012 16:08

My child was not a baby when she died, but there's no way I'd want to hold a baby girl at this point in time.

Was missing her so so much yesterday. Today, too. Well, every day.

whiteandyelloworchid · 19/09/2012 18:16

i hear you expat, its just every day is a struggle

sometimes i find myself thinking is this the best i can hope for, that basically i get used to feeling this shit and sad all the time, thats whats normal for me now and for the rest of my life

chipmonkey · 19/09/2012 18:59

white, people I know who have lost a child years ago say it does get easier. Not that it goes away but that the pain becomes less acute. It's almost a year for us and I am finding it a bit better.

whiteandyelloworchid · 19/09/2012 19:31

thanks chip thats really good to hear, as i feel pretty bleak right now

thankyou

MiaAlexandrasmummy · 19/09/2012 21:14

white For me the pain becomes easier (overall, but with waves of intense, real grief) and yet paradoxically, less believable with each day that passes. I am not crying every day anymore, but I am also horrified that nearly a year has passed too.

Mia still feels so close to me, so real. I saw a little girl toddler running down the mall today, giggling as she enjoyed the freedom of movement, and I thought "Oh, Mia would do that" and then my second thought was "I have no damn idea if she would or not" - and I will never know.

I have realised that - and this sounds awful - that while I feel horribly bad and sad for everyone else here, I really have no concept of losing a child while still in utero, or at birth, or just after birth, as a young child, as a teenager, or as a adult... I only know what I have experienced, losing my little girl at the age of 13 months, a child with 4 teeth, beginning to walk and talk, who never had a first haircut. Yet so many here of you didn't even have that. And I am not sure that what I feel is enough, so I do apologise. I feel so self-centred, so selfish.

expatinscotland · 19/09/2012 21:24

MAM, you are not selfish or self-centred. We're all here due to the experience of losing a child, a club no one would want to join.

We had nine years with our daughter, and as for all of us, our inheritance is loss - no high school, boyfriends, period pains, shopping and spa days, college or university, wedding, children, learning to drive, going on holiday, prom etc etc.

fioled · 19/09/2012 22:00

Sickening few days. Was a concern X had been exposed to measles, and obviously hasn't had his jabs yet because he's too young.

After blood tests on the child today with suspected measles it turns out it isn't but instead a reaction rash to one of her epilepsy meds. Its taken far too long to get me this information and I've been getting more and more worked up with fear these last few days.

Tonight I'm feeling sick, and tense and teary with relief. Which is ridiculous, but I'd been so anxious these last few days, imagining the worst case scenario if he came out with the disease. I'm so frightened of all these childhood infections (preventable ones or the routine ones) and anything happening to X too :(

OP posts:
MiaAlexandrasmummy · 19/09/2012 22:06

fioled how could you not be sick with anxiety about X? It's just part of our legacy of loss... once you have seen the dark side of the world, it is difficult to believe otherwise. We are changed forever. But I am so, so glad X is ok.

shabbatheGreek · 19/09/2012 23:28

Oh Fi....cariad...you are bound to feel that way. I was adamant that Tom was not having MMR jabs. Totally adamant. Before he was old enough for his jabs I worried that he had heart problems like his big brother....then I worried in case he wanted to learn to ride a bike (like his big brother) our lives have been changed and the balance of our lives has been distorted. We are all individuals and we all have experiences and worries and fears that change the way we are feeling about life from hour to hour. I wish I could give you a massive hug. I wish I could tell you that your fears are the same of any mother - bereaved of a child or not. 'one foot in front of the other my friend...one foot in front of the other and dont forget to breathe xxx'

chipmonkey · 20/09/2012 00:02

Mias, that's true of all of us, though.
The only way I can imagine, say, what expat's going through, is to look at ds3, who is the closest I have in age to Aillidh and imagine him gone. And I don't want to do that, particularly.
Or to imagine what you're going through, I would have to imagine that ds1 got to be 13 months old and then died, before we had ds2.
The way I see it, it's probably the same grief, the same shock, disbelief, guilt, rage, pain, anger, all those awful emotions ten times worse than you ever felt them before.
What I do think is probably different, is other people's reactions. I think people who never lost a child, seem to think that it's worse to lose an older child. That there was more to lose. That the stillborn baby or the baby who died from SIDS, is less of a loss, that there was less there to miss.

I don't actually get that from people who have lost a child, but definitely from those who haven't.

fioled yesterday, ds1 complained of pains in his chest, then pains in his back. Then he got a cold. He was sent home from school. I almost had him diagnosed with meningitis before I got a grip! When you know the worst can happen, it's very hard not to imagine that it could happen again. Totally normal. But X is such a healthy little bunny, I really don't think that you have anything to worry about xx

expatinscotland · 20/09/2012 14:12

'What I do think is probably different, is other people's reactions. I think people who never lost a child, seem to think that it's worse to lose an older child. That there was more to lose. That the stillborn baby or the baby who died from SIDS, is less of a loss, that there was less there to miss.
I don't actually get that from people who have lost a child, but definitely from those who haven't.'

YY, chip! Very well put.

You also get people who qualify loss if it's from, say, RTA, suicide, murder, etc v it's from a 'natural cause', or suddent v from an illness like cancer.

Again, never had that from anyone who has actually lost a child, and sadly, I now know many who have Sad.

My good mate B, his son died age 18 from a bad batch of heroin. From the time the boy was 14, he struggled horribly with bipolar I disorder. His life, and that of his family, was hell as his disease progressed and he became involved in illegal drugs in a vain effort to control his symptoms the way the prescribed medication could not without side effects he found impossible to live with.

For years, B dealt with huge regret because he admits, at times, he sometimes wished his son were dead. But he didn't really, what he wanted was for him to be well and for the rollercoaster that is severe mental illness to stop.

It took him a long time to forgive himself. He didn't really want for S to die, he wanted him not to suffer. As he put it, you can't wish a person to die anymore than you can wish them to be well, bring them back, etc. Every thing he felt was a natural human response to watching your child suffer horribly.

We speak often about our children and losing a child.

He brought it up, too, how some people believe that it's somehow easier to lose a baby than an older child, and what a load of bunk that is.

'A loss is a loss,' as he put it.

MrsKwazii · 21/09/2012 10:08

Blimey Fioled, you must have been sick with worry about measles. Like everyone else has said, once you've lost a child you're never the same again - we know that children can die and I know that I always have that in the back of my mind now. I cannot assume that DD2 will have a long and happy life, but then again I cannot assume that she will not. It's a bloody tough one to get my head around without being totally paralysed with fear.

I know what you all mean by the 'hierarchy' of loss too. I've felt (ashamedly) jealous of people who've had more time with their children, and then abashed that I had more time with DD1 than other bereaved parents had with their children. A loss is a loss though as you say Expat, and it is that snuffing out of potential that I also find very hard to deal with. All those thoughts and plans for the future that are now tattered.

I read this in a blog recently, which resonated for me and I'm worried it is what I'm doing:

"[we] miss the here-and-now-and-tomorrow because we are so trapped in the there-and-then-and-yesterday."

I don't want to let go of yesterday - she was just here - but equally I don't want to squander the precious time that I have in my life, and in DD2's life. It's such a difficult balancing act.