In memory of our lovely Aillidh

[expatinscotland]

At 11.25 last night, our beautiful, 9-year-old daughter died of complications from treatment for acute myeloid leukaemia, she went into respiratory failure after contracting human metapneumo virus following conditioning chemotherapy for stem cell transplant.

For many days, she lingered on a ventilator. But last night, she developed a pneumothorax and rapidly deteriorated.

She died within seconds of the ventilator being taken off.

I can't believe she's gone, or how broken her long body looked.

my thoughts are with you, aillidh and family
so sad

Thinking of Aillidh and expat xx

We still think of you and Aillidh every day expat. Sending much love to you and your family.

Haven't forgotten you all x

Very sorry to hear of the loss of your lovely daughter.

raised a glass to your beautlful daughter

Thinking of you

I think of you all the time Expat, your beautiful daughter fought so hard. It is just so sad. Xx

She nearly made it. Her CRP was the lowest it had been since she was transplanted, 40.

The damage from the chemo was too great.

She suffered catastrophic lung damage and failure.

When she died, she was on the way to multiple organ system failure, her kidneys having packed in days before, her liver on the way.

Her sats had been tanked for days, though her lactic response was good.

Her heart beat for mere seconds after her vent was pulled. My ear was over her chest as it was done.

She was gone.

Expat, I can't even imagine how hard this is but I wanted you to know that your strength inspires me everyday, your family will keep going and keep growing and Aillidh is forever a part of that. Keep chatting to us on here - someone's always awake! Xx

Your daughter was amazing expat xx

I can't imagine what you've all been through, but we can listen and love you all always xx

Oh my love, it's just so unfair isn't it - to be so close & yet so far :( I think of you all everyday and still can't believe she didn't make it, Aillidh was such a little fighter wasn't she, she certainly gave it her all - and more. I wish I could have met her, she sounds like such a wonderful little girl, with such a lovely way about her. I want to scream & shout at the injustice of it - I can't imagine how you must all be feeling. Lots & lots of love & strength xxx

Expat, she fought a good fight.You all did. You were there for her. Remember that x

Love to you all expat. It's so hard x

Love to you. I really wish words were here amd somehow we coukd say something to help but your pain will.never go. I am so.so sorry x

Still thinking of you expat ((hug))

my heart goes out to you expat x

oh expat I wish I could hold you right now xx

She lasted 7 months and 25 days after diagnosis and 1 month+29 days post transplant. 11 days in ITU.

expat- she was truly beatiful and ever so lucky to have you in her life. i follow on facebook rather than on here as find it easier (so many people love you!), i dont always comment as i dont know what to say tbh.

I remember so well when you told us of the diagnosis,expat.

Cannot believe it was only 7 months and 25 days ago xx

I wish there was something we could say or do that would bring her back to you, healthy, Expat. But we are mere mortals I am afraid and all we can do it stand with you.

still thinking of you all, gosh i didn't realize that it was less than 8months ago that your wonderful Aillidh was 1st diagnosed with such a cruel illness. I hope you can find even a little comfort from Aillidh now being in heaven but it is so heartbreaking that she isn't where she should be....with her loving family

It was 25 November 2011 she was diagnosed.