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A love story : Living without my beautiful red-headed Mia

995 replies

MiaAlexandrasmummy · 16/05/2012 21:47

This love story began before Mia was born, intensified when she entered our lives, and it will continue to burn strongly forever. Mia is my red-headed flame, my sweet pea, my noisy sprite. Mia is joy, she is love, she is every good thing you can imagine. And I am so incredibly proud to be her mummy.

Yet she is gone. Mia died totally unexpectedly last October at the age of 13 months. Impossible, but true.

We miss Mia?s cuddles, her weight and her little legs curled around us, her face against our cheeks and her warm arms around our necks, the soothing pats on the back that she would give us as we in turn patted her. She was intimate, coming to us, arms raised, for a reassuring cuddle, but then with a smile, content she would wiggle free, independent and inquisitive about everything around her, exploring her world, looking in cupboards, peeking between the banisters as she climbed the stairs and just revelling in her existence.

I have tried to estimate how many times a day we kissed Mia. Picking her up, putting her down, dressing her, feeding her, washing her hands, just because? it must have been hundreds. Equally, we always made a point to tell Mia every day just how much we loved her. We know she listened.

I cannot begin to adequately describe the love that we have for our little girl. I can only ask you to imagine the most perfect feeling of love and warmth that you can, to double its intensity, and extend it to infinity and you are still not even close to the amount of love that we shared with Mia every second of the her 13 months.

This is her story, and mine, and my reality.

OP posts:
Everlong · 24/10/2012 21:27

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saffronwblue · 24/10/2012 22:24

Thinking of Mia snd her family today.

trulymadlydeeply · 25/10/2012 16:47

Wrap that shawl of love tight around yourselves to carry you through these grim days to better moments in time.

Thinking of you with love.

XXX

mummy1986 · 26/10/2012 18:28

I have just discovered your thread and just wanted to say your daughter was such a gorgeous girl and im sorry for your loss.It has brought me to tears and i send you love strength and hugs xxxxxx

MiaAlexandrasmummy · 28/10/2012 12:20

I do think my shawl of love is wrapped around me. I feel it everyday.

I did wake at 3.10am on the morning of the 24th, and thought about how, a year ago, the doctors were conducting CPR on Mia, and would have been giving her one of eleven(!) doses of adrenaline, and I slept fitfully after that. Hard thoughts, but we have gone over those last terrible hours so many times at the inquest, and so much before that, that the particular significance of that time held no additional pain.

And I have realised something important as the anniversary date which I had feared so much has now passed. Actually, that day was no different than any other. Mia is still not here. Yet my love for her does not change, and has not changed over this time.

I am certainly bewildered that a year has passed, because I still feel and see my squeaky, joyful little girl with such vivid reality in my head, and I have so many beautiful memories of her. MrMia feels the same way. He likens our feelings to the phantom sensations felt when a limb is amputated. We both feel Mia so strongly as part of our everyday lives. We live with both the love and the pain, it is part of us.

Mia is still very present in our lives, a little joyful presence, a bundle of love and noise, who makes us smile.

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Everlong · 28/10/2012 12:32

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MiaAlexandrasmummy · 28/10/2012 20:56

Mia is just so perfect. An absolutely perfect daughter for me.

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MiaAlexandrasmummy · 29/10/2012 19:28

A bit of a shock yesterday. I went into the supermarket, and walked to the newspaper stand, and suddenly I realised I recognised a photo on the front page of a local paper - there was my beautiful, smiling girl. Mia's inquest was their cover story, entitled "Every parent's worst nightmare." I guess I shouldn't have been shocked, as I knew that they were running the story, and it was factually very accurate (unlike some reports) but still... Of course, I bought a copy, and then totally flustered the shop assistant by pointing to Mia and saying "That's my little girl." She smiled, meaning to say something nice, until she quickly realised that this was not a happy story. I felt bad for her - I shouldn't have put her in that situation.

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Everlong · 29/10/2012 19:36

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Welovecouscous · 29/10/2012 20:27

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janey68 · 30/10/2012 00:08

It was a natural instinct for you to say that the photo is of your little girl, and I imagine you may have felt bad if you hadn't acknowledged Mia. I think welovecouscous is right - I expect the assistant felt touched that you just told her you are Mia's mum and even if she seemed flustered she would have felt nothing but empathy.

proudmum74 · 30/10/2012 20:46

Hi Mia's mummy, I think I live near you and saw the story in the paper last week. I just wanted to say how sorry I am for everything you have been through and that Mia is a very beautiful little girl. Take care x

pookiecat · 31/10/2012 13:08

As always Mia is in my thoughts and love and light to you and yours. xxxxx

MiaAlexandrasmummy · 31/10/2012 15:05

Today a thought struck me. All being well, in 5 or 6 weeks' time, I will have a new little person in my life. My thoughts will not solely dominated by Mia. Not that this is completely true now, in that I am very aware of this baby growing inside me. But Mia is real, and this baby is still not a person I can yet envisage. I'm not sure whether that this makes me sad or not. Whether I should somehow devote more time to Mia now, while I can, just as any parent might with a first-born child before the second arrives ; whether I should try to mark this period in some way, by finally putting together the photo montage we have often discussed, write her a poem, or...?

And another two occurrences made me feel that, also in other ways, I am reaching a new stage in my life. However, both of these directly relate to Mia.

  • I will soon start doing more campaigning work about improving relations between the NHS and parents, and today I was asked if I will speak to a freelance journalist on this.
  • we met with the Woodland Trust today, to discuss our plans for Mia's Wood. They have given us some invaluable advice about the types of trees, shrubs and wildflowers which would be suitable for the site. While we have nothing fixed, they were very receptive to our vision and broad ideas, particularly the fact that we can allow the wood to evolve over time. We now need to draw up a master plan for the site, which is exciting.

I suddenly glimpsed a future I would never have expected to have, contacts I would otherwise have never made, actions I would imagined taking - all sitting before me. All because of my love for Mia.

Beautiful girl. My inspiration.

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trulymadlydeeply · 31/10/2012 16:16

What a wonderful post, Mias.

Love is contagious - it spreads and puts down new roots where it touches. You have spread your love for Mia and we are all infected - and affected - by it!
How wonderful that this is her legacy: that what was personal is spreading, to benefit nameless parents in their contact with the NHS.
How proud you must be - of Mia, and of yourselves. And how proud her sibling will be, to be related to her.
Much love, as ever.
Xxx

dontmixthecolours · 31/10/2012 16:24

Long time lurked on your threads here. What a lovely, brave woman you are. And what a huge step to see the positives coming out of such tragedy. You really are an inspiration.

ExitPursuedByAaaaaarGhoul · 31/10/2012 23:19

You have already written many poems to Mia, in your posts on here.

I wish you joy in the new life you will soon be experiencing.

Welovecouscous · 31/10/2012 23:23

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MiaAlexandrasmummy · 02/11/2012 11:51

Yesterday a year ago, I wrote this :

Today was amazing. Thank you to everyone who shared in it. While it was so sad, our celebration of Mia's life could not have been more perfect. The sun shone, the autumn leaves gleamed, and the world gloried in the life of our red-headed child. She was surrounded by so much love, and for that I will be forever grateful.

MrMia and I talked about it yesterday morning, and really feel that there is not a thing we would have done differently. He gave the most beautiful eulogy ever, and I often go back and read it, as the words so perfectly depict our love for Mia.

I have posted parts of it here too, but I'd very much like to share it in its entirety with you, on this Mia-bright autumn day, if only as a way of thanking you for the love and friendship you have shown to me over this past terrible year.

Thank you all so much for the unwavering love and support that you have shown Miasmummy and I at this terrible time. We know that in her short but brilliant life Mia has touched each of you and we know that our grief and our desperate loss are shared by all of you.

Miasmummy frequently instructed me when I left home not be a ?daddy bore?, I know that I was, and I make no apology for it. Talking about our darling Mia - what new ability she had discovered, talking about how she was growing and changing, or just how much, with one small, crooked smile, she made our world such an amazing and happy place ? talking about Mia is just something that you all know I love doing.

There are so many wonderful things about our little Mia that deserve to be shared with you, yet today, sadly, eloquence escapes me.

In some ways, today may be easier than the days ahead, we have you all here to celebrate Mia. It is in the days to come that we will need your love and friendship the most, when the world continues, and we struggle to find our way. The axis of our world has disappeared, and so has our direction and will. Please do be direct in your offers of support, as we can?t yet tell you what we need. Come up with ideas ? we will say yes or no. Above all, please don?t hide your children away or feel awkward in talking about your joy in them with us. We know you love them, and we are happy for you.

Each night when Miasmummy and I would go to bed one way or another Mia always ended up snuggled between us. Finding solace, the soft warm cheeks of her little face would be pressed firmly into her mum?s neck, I being left with her other soft, and often fragrant, cheeks pressed into mine.

We would wake each morning and, after some happy juice, Mia would crawl around our bed delighting in her physicality, climbing over us, playing peek-a-boo under the covers, dashing back to give us open mouth kisses on the chin, burrowing her head into our faces. The playfullness she showed at being able to point to her belly button, blow raspberries on our stomachs or clap her hands was intense. She was always busy, always exploring, always happy.

Breakfast, indeed any meal, was a delight for Mia. Many of you have commented how she loved her food, both in variety and quantity. But Mia was also so generous with her food, she loved nothing better than to reach out, giggle and place some small, cherished morsel in your mouth. This affection for sharing food was innate, like so many of Mia?s wonderful qualities she gained it directly from her mother. Much of her lovingly prepared meals would go straight into Mia?s into mouth, but much would be stored in her bib, painted around her face or rubbed in her beautiful, soft and eccentric, red hair.

Mia?s hair, of which Miasmummy was justifiably so proud was, like our baby, unique. A colour shared with family members on each side, but also all her very own. The trees, in their gorgeous autumnal colours, the reds and golds resonating in the sun, will always remind me of our Mia as will the rustling of leaves that so captivated our little girl on our many walks together. This is why establishing a wood in Mia?s memory, a Mia wood, is so important to us. Planting saplings that will grow and mature over a lifetime, what should have been Mia?s life time, into mighty trees - repaying the care and love invested in them with beauty, a lasting joy to everyone.

I was constantly thrilled by Mia?s perfect tiny gripping hands and at the happy expressive little face that turned and beamed at me with the full force of love when I returned home at the end of the day. But the love and devotion that Miasmummy and Mia shared was an utter joy to behold, a bond unbreakable and eternal, I have witnessed nothing that was more intense or indeed so perfect. I am delighted that they got to share so much, neither could have made more of their time together.

Thanks to Miasmummy, Mia was blessed with such a variety of stimulating activities; from singing, signing and swimming, to just chilling with her precious little friends or staring in awe as her older cousins played around her, her life was a constant whirl of fun. Mia particularly loved her music, playing her triangle, shaking her little egg rattle and bouncing up and down to a song, sometimes in time, but always with delight. She was just beginning to explore creative dance too.

As many of you know, Mia had a staggeringly piercing scream, both discordant and so very loud. We apologise to all of you for this, especially those of you with children to whom she taught this skill. But Mia?s vocabulary was expressive and rich, consisting of songs, squeaks, squeals and belly laughs, as rich as any adult language, especially when combined with her magical pointing ?finger of power? that could bring to her anything she wished for (as long as mummy or daddy was nearby).

We will miss Mia?s cuddles, her weight and her little legs curled around us, her face against our cheeks and her warm arms around our necks, the soothing pats on the back that she would give us as we in turn patted her. She was intimate, coming to us, arms raised, for a reassuring cuddle, but then with a smile, content she would wiggle free, independent and inquisitive about everything around her, exploring her world, looking in cupboards, peeking between the banisters as she climbed the stairs and just revelling in her existence.

Miasmummy says she has tried to estimate how many times a day we kissed Mia. Picking her up, putting her down, dressing her, feeding her, washing her hands, just because? it must have been hundreds. Equally, we always made a point to tell Mia every day just how much we loved her. We know she listened.

I cannot begin to adequately describe the love that we have for our little girl. I can only ask you to imagine the most perfect feeling of love and warmth that you can, to double its intensity, and extend it to infinity and you are still not even close to the amount of love that we shared with Mia every second for the last 13 months.

13 months ? that is just 400 days.

One of our friends, also a mother, told us when Mia was born, to enjoy every moment. Each was precious and fleeting, as she would change and grow so very quickly. We are so glad that we lived, loved and cherished every second of our time with Mia. We will now not get to share any more of Mia?s amazing life, to see her grow, walk, graze her knees, go to school, learn, fall in love and perhaps have children of her own. For all of this we are profoundly sad. But words just cannot express how intensely proud we are to have been her parents and to have known her and loved during her short time with us.

Goodbye our darling.

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mumof2teenboys · 02/11/2012 12:10

That is the most beautiful, heartfelt and amazing tribute to love that I have ever read.

Once again, I am humbled by both your and MrMias' strength, I wish I was half as strong as you both.

Everlong · 02/11/2012 12:27

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jmf294 · 02/11/2012 12:36

Wow- such beautiful heartfelt words.
It brought tears to my eyes and again reminds me just how wonderful you and Mr Mia are, and I say that with most genuine sincerity.
Wishing you much love and light xxxx

Welovecouscous · 02/11/2012 13:05

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flubba · 02/11/2012 13:29

In tears again here.

Perfect words for such an imperfect world.

Tamdin · 02/11/2012 15:45

Tears here too. A father's pure love for his little girl. Sending you both love and best wishes as always x

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