Twinkie I am so, so sorry. You sound like you have been a pillar of support and I would be so very proud if you were my sister. I'm afraid I'm unable to give any kind of advice as I have no experience of anything like this. However a friend recently had a miscarriage at 20 weeks, they had a service for the baby etc. Just her and her dh attended, I think she wanted to keep it private. And though I don't talk about it all the time, I do every now and then ask her how she is faring. I think it helps her to know that people haven't forgotten and don't expect her to carry on as normal so soon. They didn't give the baby a name, but if they had then I would always refer to it with that name.
You are doing all that you can for your sister and I'm very sorry that other family members aren't sharing the burden with you. It must be awfully stressful for all of you and I hope you have people close by that you can turn to when it all gets a bit much.
You know Countess Dracula has started a thread in further up about an appeal in the Times for babies who desperately need help in Afghanistan. If you think it would help, you could always make a donation as a family in Miles' name. Then at least his memory has benefitted other children and may even save their lives.
Offering you lots of cyber hugs and once again, I am truly sorry this has happened to you and your family. xxx