Mothers Instinct

[harryconnolly]

Hi all, you may have seen in the press this week that my beautiful son Harry died last year through needless mistakes made by several Drs.
I feel I was not listened to by medical proffesionals and had I have been I truely believe the outcome would be different and I would not be writting this now.
I am determined that Harry makes a difference and that NO other child dies needlesly because mothers are NOT being listened too.
My friend and I are setting up a charity called MOTHERS INSTINCT to raise awareness and to help other families in our tragic situation.
We have a facebook page MOTHERS INSTINCT.
Please take a look at our page and share your ideas and experiences, we hope to have a web page set up really soon.
Thanks mums xx

Wishing you all the best with your charity, and I am so sorry for your loss xx

such a harrowing thing to experience.so sorry your beautiful wee boy died
your charity idea sounds hard emotional work,but a v worthwhile campaign
write to downing st, the political parties and contact media too,to get maximum coverage

I hope over time you find some peace, you will never get over a loss of a child,I hope you do find some fortitude

So sorry you have lost your little boy. I lost my baby daughter last October (SIDS) and my ds4 is also Harry. Will look at your page.

Thanks for your kind messages.
The most important message now is that other mothers learn from this and as one of you other mums has posted if you have to camp out in the hospital car park to ensure you are listened to so be it. xx

So sorry for your loss, a mothers insinct is so important and all mums should be listened to.
I will take a look at your page xx

Have liked the page. Also read your story in the paper and am so sorry that you lost your child when you could all see how ill he was. Your Harry is a beautiful boy and I'm so sorry that the system clearly failed him.

harryconnolly we have a thread here for bereaved Mums if you would like to join us. here

I'm so sorry harryconnolly. Please do join us on the thread that chip linked to.

Is it possible to put a link to the Facebook page? (found another group, but not the right page) xx

I have found your story in the paper. Harry was a gorgeous, gorgeous boy. It is so unthinkably awful, I sincerely wish you luck xx

www.facebook.com/?ref=tn_tnmn#!/MothersInstinctUK

i am so sorry for your loss, i too have lost a son.
wishing you strength to get thrpugh the following months.

is there anyway i can see th charity information if im not on facebook?

I've read about this too.
I'm so sorry you lost your beautiful boy.
I hope the charity helps other families avoid such a tragedy x

tiny thank you for your kind words and I too am sorry you have lost your precious boy.

FB is all we have at the moment but are currently putting together a webpage will update all when this is up and running xx

I have just found your article, Harry was such a beautiful little boy & my heart goes out to you.
Such awful catastrophic mistakes made and i cannot believe they sent him home when he was clearly so ill.
It really makes you think about how our instincts count for everything and should not be ignored.

[[https://www.facebook.com/?ref=tn_tnmn#!/MothersInstinctUK
]]

Here's the link in limky form for you :)

Hello harry I have already linked to your FB page through a mutual friend. We lost Mia very unexpectedly last October, and I feel the same as you. This sort of thing can't go on. I suspect we may meet sometime soon.

Harry's Mum - I am really so very sorry to hear about Harry :(

I'm not on facebook so please let us know when you have a website.

It's incredible that you are doing this.

MiaAlexandrasmummy. I read about your beautiful daughter when you first posted your terrible loss. I dont think I commented then but you have been in my thoughts since. She is beautiful and I am so sorry xx

Hi MiaAlexandrasmummy, I believe you know Odette who also lost her Harry through medical negligence because she wasnt listened too. Odette is a good friend of mine and has told me about your lovely Mia. Did she tell you about the bereaved parents group we go to in MK? They are a lovely group of people and to be honest dont know how I would have got through this past year without them. Lots of Love xx

Yes, I know Odette. Hope to come along to that group soon. She has spoken of you too, and we read last week's news articles about Harry. Our hearts just went out to you and your family.

This is the best charity/awareness campaign in years.

It stands out.

I attended a talk by Diana Lamplugh in the late 90's about staff safety (different topic, I know) but what she said has always and will always resonate in both my personal and professional life (I am a mental health nurse).

She told us never to ignore our instincts, the hair standing up at the back of our necks, the nagging feeling that something is wrong....

Her own research showed her that adverse incidents were frequently preceded by an instinct that there was something not right which was subsequently ignored, rationalised or dismissed by others.

I am so so sorry for the loss of your son but thank you for thinking of others.

to you.....

Harry's mum - I am so sorry for your loss. I have personal experience of doctors misdiagnosing myself as a child.

I do find it infuriating that some behave as if they have x ray vision and know exactly what's wrong. They are not god and should not behave like that.

I do hope people listen to your message and learn from the disgraceful mistakes those HCP made